Mo. Code Regs. Ann. tit. 9, § 45-5.010
PURPOSE: This rule defines terms, establishes principles and sets out the process by which Medicaid agencies providing residential habilitation, day habilitation, supported employment or individualized supported living services attain certification.
(1) The Division of Mental Retardation and Developmental Disabilities (division) shall establish procedures under which a Medicaid agency (agency) providing residential habilitation, day habilitation, supported employment or individualized supported living services to persons with developmental disabilities attains certification. In establishing those procedures, the division makes the following assumptions:
(3) critical purposes—
its regional centers and the agencies fulfill their responsibilities to persons with developmental disabilities;
practices needed so that the agencies will be more responsive to the persons’ needs; and
developmental disabilities as valued members of their communities;
(2) Terms defined in sections 630.005 and 633.005, RSMo are incorporated by reference for use in this rule. As used in this rule, unless the context clearly indicates otherwise, the following terms also mean:
(2) persons, including the team leader, appointed by the division director or designee to conduct surveys of agencies;
a person with a developmental disability or other consumer who has completed training and credentialing by the division, qualifying him/her for membership on a survey team; and
(3) This section prescribes four (4) sets of principles for agencies providing residential habilitation, day habilitation, supported employment or individualized supported living services to persons with developmental disabilities under the Medicaid Homeand Community-Based or Nursing Home Reform Waiver program.
(A) Community Membership.
munity involvement—Outcome: Individuals are active participants in the community where they live.
and enriching as others in the community.
to actively participate in community life.
when using community resources.
ized supports receive them in a place or manner typical for all other community members.
ipate in recreational activities in settings that are physically integrated into the community.
their time in integrated settings.
communities.
appropriate recreational activities.
ticipate in the ethnic life of the community.
ticipate in cultural arts activities in the community.
adaptations with consideration for acceptance in the community.
portation that are typical for others in the community.
are consistent with community norms.
skills which are critical to their acceptance in the community.
manner which is likely to be accepted by the community.
ticipate in the religious life of their choice in the community.
ticipate in political activities of their choice in the community.
ships—Outcome: Individuals have positive relationships with people who are not paid providers.
oping friendships.
taining friendships.
relationships with family members.
ble, consenting, intimate relationships are supported.
ers are encouraged and supported.
works are expanded and enhanced.
nities for social contact with the same people or groups of people.
ties at times which are conducive to building relationships.
interests are emphasized in expanding the scope of relationships.
ducive to developing relationships.
homes and on social occasions.
sion personal information concerning significant others.
consistent with the intensity of the relationship.
tion—Outcome: Individuals experience the rewards and responsibilities of contributing to society.
tribute to and receive from others.
and assume roles in community organizations.
and assume roles in religious organizations.
unteer.
their neighbors.
cations—Outcome: Individuals’ communications are recognized, responded to, and supported.
communication in a variety of settings and with a variety of people.
vices, or both, to enhance functional communication.
alternative or augmentative communication systems that are functional.
systems of communication have those systems or functional alternatives available for use at all times in all environments.
have the option to receive training in the means of communication used by the individual.
cation systems are understood and used by people when providing supports or services, or both.
are arranged to promote conversation.
accessories and personal possessions which promote conversation.
activities and experiences about which to communicate.
and other communication are recognized and receive a response.
through positive interaction—Outcome: Individuals interact in a manner which promotes inclusion in community life.
ronments where most individuals engage in positive, acceptable interactions.
access to the community even though they may be displaying unacceptable behaviors.
understood in terms of communicative intent and function.
understood in terms of the variables contributing to the behavior as well as the physical characteristics of the behavior.
interactions are directly observed in the environments where the behaviors occur to determine the purpose of the behavior.
interactions are directly observed by persons knowledgeable and experienced in providing behavioral supports.
reflect an emphasis on analyzing the possible reasons for unacceptable interactions prior to planning and implementation.
threatening behaviors are reduced and more functional alternatives acquired.
tion to behavioral supports are considered when severe and persistent mental illness is the presumed causal factor.
provision of a variety of programming strategies for facilitating or teaching appropriate adaptive behaviors.
integrated rationale explaining the importance to the individual for any proposed intervention.
as possible, from engaging in severe, unexpected and threatening behaviors that endanger themselves, others, or community property.
endangerment through the supportive, respectful use of behavioral supports.
protected when behavioral supports are implemented.
(B) Self-determination.
tive self-expression—Outcome: Individuals have the opportunity to enhance self-esteem through self-expression.
demonstrate interest, concern, and consistency.
unconditional positive feedback.
positive.
personal problem solving skills.
sonal style.
personal competencies.
ions and preferences.
their cultural heritage.
their families and friends.
histories.
belongs to them and what belongs to others.
bodies.
themselves and others.
decision making—Outcome: The responsible choices of individuals are respected and supported in all phases of life.
goals.
and experience natural consequences.
ing out choices.
which they accept personal responsibility.
ration of their personal area.
ration of common living areas.
ing health care providers.
from a variety of alternatives in all areas of their lives.
money in a typical fashion.
possessions.
Individuals are in control of their own lives.
and use self-advocacy and assertiveness skills.
and informal means to influence decisions and affect changes.
advocacy efforts.
external advocates of their own choosing.
dissatisfaction without fear of recrimination.
governing boards or serve as ex officio members.
strategic planning of agency supports and services.
personnel.
over their own lives, the degree of external control and protection is reduced.
Person-centered planning facilitates the empowerment of individuals to attain personal goals.
about the individual’s capacities, dreams, interests, and needs is developed.
about the individual in the community, his/her family, social support network, and associational life is developed.
ment of personal profiles is obtained in natural settings.
ment of personal and social profiles is obtained from the individual and from others who know the individual well.
language.
plines supplement knowledge about the individual.
or co-chair their own person-centered planning sessions.
the time, place, approximate length, and agenda for their person-centered planning sessions.
are held as frequently as necessary but at least annually.
plines and significant others invited to the person-centered planning sessions have spent time with the individual prior to the meeting.
and inviting the people who will participate in their own person-centered planning sessions.
ning process selected is based on each individual and his/her life situation.
of various types of person-centered planning processes.
are the focal point of the person-centered planning session and are actively addressed.
rationale for the relevance to the person, a statement of what must be accomplished, and criteria for attainment.
ning sessions consider how to use or enhance natural supports before recommending specialized services.
decrease dependence on specialized services and to increase interdependence in the community.
ning sessions determine whether support or training strategies, or both, are desirable.
ports and services the person needs are specified.
centered planning sessions decide on who will assume responsibility for specific implementation strategies and timelines.
a combination are located or created to implement the person-centered plan. 9 CSR 45-5
vice providers.
goals are developed based on the individual’s personal and social profiles and relevant professional disciplinary assessment.
of the person-centered plan are functional, effective, and efficient.
in which the individual lives, works, engages in recreational activities, and has relationships.
coordinate their individual supports and services. AA. Persons responsible for coordinating the person-centered plan review it with the individual as frequently as necessary but at least monthly. BB. Plan review includes specific objective data as well as feedback from the individual.
nating the person-centered plan make revisions based on the findings from the review process.
reduced or modified in amount and intensity whenever indicated.
(C) Rights.
respect—Outcome: Individuals are treated with respect in an environment that promotes dignity.
viduals are considered in all aspects of their lives.
only when individuals do not have an identifiable natural support network.
others.
trary rules or unnecessary behavioral consequences.
separated from staff by imposed practices.
present unless included in the conversation.
accommodated.
people-first language.
appropriate manner.
versational tone.
priate interactions.
services in age-appropriate environments.
of personal possessions.
private benefits to which they are entitled.
Individuals exercise or are assisted in exercising all rights under the Constitution of the United States and those stated in statute.
the rights and responsibilities of citizenship.
process to limit their rights and are assisted through external advocacy efforts.
cess when limitations are imposed.
cate privately.
ment.
detecting and reporting abuse and neglect.
by policy.
and federal regulations.
the individual, participate in planning and decision making.
assisted in the process of obtaining a guardian or conservator or are referred to advocacy services, or both.
about individuals in confidence.
records and staff are available to answer their questions.
work for which others receive pay.
appropriate public education are supported.
the rights and responsibilities of living in the community.
(D) Meeting Basic Needs.
health—Outcome: Individuals maintain good health.
care provider to meet health care needs.
intervals recommended for other persons of similar health status.
tions at intervals recommended for other persons of similar health status and receive follow-up dental treatment as needed.
medical services have access to specialists.
preparation for medical and dental care.
appropriate to nutritional needs.
dietary needs have those needs reviewed by a dietary consultant.
ipate in fitness programs.
through measures typically taken to prevent communicable diseases for persons with similar health status.
decisions about their health care to the maximum extent of their capacities, and their decisions about their health care are recognized and supported.
about taking prescribed medications.
prescribed.
ly managing their medications.
larly evaluated to determine their continued effectiveness.
are supported by people who have received information about the individuals’ medical conditions, know how the medications should be taken and are aware of possible side effects.
Outcome: Individuals’ environments are safe while assuring choices and freedoms.
supervision consistent with personal ability and the nature of the environment.
ronments are clean, safe and well maintained.
ronments have modifications or adaptations to ensure safety.
ronments have passed externally conducted health, safety, and mechanical inspections.
through preventive maintenance of vehicles, equipment and buildings.
ticipate in home repair and maintenance training.
homes is within an accepted comfort range of sixty-eight (68°) to seventy-eight (78°) degrees Fahrenheit.
responding to emergencies in a safe manner.
cy drills occurring during daytime, evening and nighttime hours at least four (4) times annually.
served by staff who are knowledgeable about emergency procedures.
evacuation exits.
and easily accessible fire fighting equipment in their homes.
smoke detectors.
cy alarm systems based upon need.
first aid, have access to basic first-aid supplies, or are provided first aid by knowledgeable staff.
diopulmonary resuscitation by knowledgeable staff.
experiencing unusual incidents have the injuries or incidents documented in their files.
by staff who have pertinent information to facilitate ordinary or emergency notification of family, guardians or other interested parties.
secure storage of materials and equipment necessary for household maintenance.
sanitary practices in all phases of food preparation and cleanup.
eat in an upright position are provided needed supports and adaptations.
ports only as prescribed.
tive, mobility, orthotic and prosthetic equipment that is in good repair.
security—Outcome: The physical and emotional well-being of individuals are met at home and promoted in other environments.
are supported to assure physical comfort.
secure and stable.
is their own.
size and design to meet the needs of those who live there.
the process when they relocate.
learn how to protect themselves from others. (4) Every two (2) years, all agencies shall seek certification under this section except that agencies accredited by nationally recognized accrediting bodies approved by the division shall not be required to seek certification. For example, agencies accredited by the Accreditation Council on Services for People with Developmental Disabilities or agencies receiving accreditation of appropriate services by the Commission on Accreditation of Rehabilitation Facilities shall not be required to seek certification. The division director shall issue two (2)-year certificates to agencies successfully completing the process and requirements of this section and contingent, upon successful completion, the following year of consumer and family monitoring as set out in section (6).
(A) Presurvey Activities.
written information to the agency about the survey process and its purpose and shall provide a list of credentialed, potential survey team members. The survey team leader shall also request information from the agency for his/her use in selecting the sample of persons with developmental disabilities to be surveyed. That information shall include, but not be limited to, the number of persons in each program service and at each service location; number of persons with various support needs, for example, communication, behavioral or medical; and a copy of the agency’s mission statement and organizational chart.
team leader with the requested information and with preferred survey team members in priority order.
provide information to the survey team leader about case management for the agency.
agency, the survey team leader shall determine the agency’s characteristics in conjunction with the agency and regional center directors. The survey team leader shall also determine the sample size and select the survey team. No survey team member may survey an agency in his/her community or any other agency if s/he or the team leader believes there could be a conflict of interest.
tors shall designate a liaison person to provide information otherwise assist the survey team.
the team and the agency director of the survey schedule and shall provide necessary written information to the team.
(B) Survey Activities.
the team to make assignments and introduce agency and regional center liaison persons.
a meeting at the agency to introduce team members and liaison persons to the agency director and other staff and to present information about the survey process.
sary information (conduct the survey). The agency director shall make people receiving its services, its staff and relevant records and policies available. The survey team shall cite examples of agency strengths and characteristics on which the agency may build during the enhancement phase of the certification process. Survey activities include but are not limited to—
services in their homes and in the community;
services, their families and agency staff;
tion plan meetings;
vations, plan, and identify emerging themes.
tion on each principle in section (3) through evaluation of trends, not on the agency’s failure to meet the principle.
the survey, it shall indicate whether—
issues are not pervasive; or
fied.
(C) Post-Survey Activities.
core issues—
duct an exit meeting at the agency with the agency and regional center directors, providing them a summary of the team’s findings and its recommendation for certification of the agency;
pare a survey report, including the team’s recommendation for certification of the agency;
itate a meeting of the agency and regional center directors, after which those directors shall develop an enhancement plan to focus on themes (issues) identified during the survey. The plan shall include but not be limited to—
ter staff in addressing the issues;
regional center communication about implementation of the plan; and
cy director shall submit the survey report and enhancement plan to the division director;
two (2)-year certificate that is contingent upon successful completion the following year of consumer and family monitoring as set out in section (6);
directors shall work together to implement the enhancement plan; and
identify common issues or problems within enhancement plans in his/her region, especially within plans of agencies in particular communities, and shall take steps to resolve the issues or problems.
issues, but the issues are not pervasive—
regional center director shall conduct an exit meeting at the agency with the agency director, providing him/her a summary of the team’s findings and its recommendation on certification of the agency;
pare a survey report, including the team’s recommendation on certification of the agency;
the survey team leader and regional center director shall facilitate a meeting with the agency director, after which the agency and regional center directors shall develop a combination enhancement (for building upon agency strengths)-enforcement (for addressing core issues) plan. The plan shall include but not be limited to requirements set out in items (4)(C)1.C.(I) through (V);
cy director shall submit the survey report and enhancement-enforcement plan to the division director;
two (2)-year certificate that is contingent upon satisfying core issues identified in the enforcement plan component and successful completion the following year of consumer and family monitoring as set out in section (6);
directors shall work together to implement the enhancement-enforcement plan;
identify common issues or problems within enhancement and enforcement plans in his/her region, especially within plans of agencies in particular communities, and shall take steps to resolve the issues or problems; and
his/her agency has satisfied core issues identified in the enforcement plan component, s/he, the regional center director, and a survey team member appointed by the team leader shall conduct a tailored survey to determine if the core issues have been satisfied.
isfied, the agency and regional center directors shall work together to continue implementation of the enhancement plan component.
the core issues but has made significant progress, the regional center director may extend the timelines in the enforcement plan component so that the agency can satisfy the remaining core issues.
isfy the core issues or even to make significant progress toward satisfying them, the division director shall decertify the agency.
core issues—
regional center director shall conduct an exit meeting at the agency with the agency director, providing him/her a summary of the team’s findings and its recommendation on certification of the agency;
pare a survey report, including the team’s recommendation on certification of the agency;
regional center director shall facilitate a meeting with the agency director, after which the agency and regional center directors shall develop an enforcement plan. The plan shall include, but not be limited to, requirements set out in items (4)(C)1.C.(I) through (V);
cy director shall submit the survey report and enforcement plan to the division director;
two (2)-year certificate that is contingent upon satisfying core issues identified in the enforcement plan and successful completion the following year of consumer and family monitoring as set out in section (6);
directors shall work together to implement the enforcement plan;
identify common issues or problems within enforcement plans in his/her region, especially within plans of agencies in particular communities, and shall take steps to resolve the issues or problems; and
his/her agency has satisfied core issues identified in the enforcement plan, s/he, the regional center director and a survey team member appointed by the team leader shall conduct a tailored survey to determine if the core issues have been satisfied.
isfied, the agency and regional center directors shall work together to develop and implement an enhancement plan.
the core issues but has made significant progress, the regional center director may extend the timelines in the enforcement plan so that the agency can satisfy the remaining core issues.
isfy the core issues or even to make significant progress toward satisfying them, the division director shall decertify the agency.
(5) An agency may appeal its decertification to the department’s hearings administrator.
(6) Every two (2) years during years when survey teams do not conduct surveys of agencies, consumer and family monitoring teams shall monitor the agencies.
(A) If a monitoring team identifies core issues—
al center director shall conduct an exit meeting with the agency director at the agency, providing the agency director a summary of the monitoring team’s findings;
director shall—
the regional center director and continue through the process set out previously in this rule; or
conducted by the regional center director, the monitoring team and the agency director; and
and—
core issues, the agency and regional center directors shall develop an enforcement plan, and the agency shall continue through the process set out previously in this rule; or
issues, the agency shall continue in its prior status.
AUTHORITY: section 630.655, RSMo 1994.* This rule originally filed as 9 CSR 30-5.050. Original rule filed July 25, 1994, effective March 30, 1995. Amended: Emergency amendment filed July 20, 1995, effective July 30, 1995, expired Nov. 26, 1995. Amended: Filed July 20, 1995, effective Nov. 30, 1995. Amended: Filed May 25, 1995, effective Dec. 30, 1995. *Original authority: 630.655, RSMo 1980.