(A) There is established within the University of South Carolina School of Public Health the Alzheimer's Disease Registry to provide a central information data base on individuals with Alzheimer's disease or related disorders to assist in the development of public policy and planning.
(B) The functions of the registry include, but are not limited to:
(1) collecting data to evaluate the prevalence of Alzheimer's disease and related disorders in South Carolina;
(2) providing information for policy planning purposes; and
(3) providing nonidentifying data to support research on Alzheimer's disease and related disorders.
(C) In gathering data the registry shall rely upon, to the extent possible, data from existing sources; however, the registry may contact families and physicians of persons reported to the registry for the purpose of gathering additional data and providing information on available public and private resources. Patient contact following data received from the State Budget and Control Board Office of Research and Statistics must be done in accordance with regulations approved by the South Carolina Data Oversight Council and promulgated by the Office of Research and Statistics.