1. (a) The commissioner shall appoint members to a newborn screening advisory committee (NSAC), pursuant to RSA 132:10-a, III.

2. (b) The NSAC shall be comprised of at least one individual from each of the following:

   1. (1) Health care sub-specialists with expertise relative to newborn screening including, but not limited to, such specialties as:

      1. a. Endocrinology;
      2. b. Pediatric neurology;
      3. c. Genetics;
      4. d. Hematology;
      5. e. Metabolics;
      6. f. Obstetrics; and
      7. g. Neonatology;
   2. (2) A member of the health and human services oversight committee, as established by RSA 126-A:13, appointed by the chair of that committee;
   3. (3) A genetic counselor;
   4. (4) An individual with a genetic or metabolic disorder or a parent or caregiver of a child affected by a genetic or metabolic disorder for which there is a nationally recommended newborn screening test;
   5. (5) A midwife practicing outside the hospital setting;
   6. (6) A representative from the New Hampshire Pediatric Society;
   7. (7) A nurse with child health experience;
   8. (8) A representative from the New Hampshire Hospital Association;
   9. (9) A representative from the department’s public health laboratory;
   10. (10) A representative from the department’s maternal and child health program;
   11. (11) A representative from the department’s children with special health care needs program;
   12. (12) A representative from the department’s medicaid program;
   13. (13) A representative from a health insurance provider; and
   14. (14) A representative from the New Hampshire Academy of Family Physicians.
3. (c) Additional staff from the department may participate in the NSAC, but shall not be voting members.

4. (d) The NSAC shall meet at least once annually to:

   1. (1) Advise the department on clinical, educational, and operational aspects of the NSP;
   2. (2) Advise the department on the inclusion of additional disorders in the current newborn screening panel based upon the criteria set forth by RSA 132:10-a, I; and
   3. (3) Offer other advice as requested by the commissioner.
5. (e) Each member of the NSAC shall have one vote.

6. (f) The NSAC shall choose, by majority vote, 2 new members to serve as co-chairs for a term of 3 years, including:

   1. (1) One co-chair employed by the department; and
   2. (2) One co-chair not employed by the department.
7. (g) A quorum shall consist of a majority of all voting members.
8. (h) A quorum shall be present for a vote to take place.
9. (i) A majority vote shall be necessary to pass a motion.
10. (j) Recommendations by the NSAC shall be advisory, but not binding.

Source. #8529, eff 12-23-05; ss by #9725, eff 7-1-10 (from He-P 3008.12); ss by #12632, eff 9-28-18; ss by #13530, eff 1-25-23