a) The Registry shall be accessible to authorized users for the submission of information related to newborn blood spot, newborn hearing and newborn heart screening. Both demographic and newborn blood spot, newborn hearing and newborn heart screening data shall be reported by authorized users. Information shall include, but is not limited to:

1. 1) Patient's name, date of birth, sex, telephone number, email address, home address, birthplace, and mother's legal name, as well as data concerning diagnosis, intervention, follow-up, parent support, parent-to-parent support and other outcomes for each child with a suspected or diagnosed condition through six years of age; and
2. 2) Type of newborn screen, diagnosis, intervention, parent-to-parent support, parent support or follow-up administered, electronic health information such as Health Level 7 message, date of service, and identity of the provider who administered the newborn screen, diagnosis, intervention, parent support, parent-to-parent support or follow-up.
3. 3) EHDI providers shall provide data to the EHDI Registry in accordance with Section 661.110.