In the Matter of the Guardianship of JOSEPH HAMLIN, FOUNDATION FOR THE HANDICAPPED, Appellant, HARBORVIEW MEDICAL CENTER, ET AL, Respondents, SALLY PASETTE, as Guardian ad Litem, Petitioner.
No. 49101-1
En Banc. November 1, 1984.
November 1, 1984.
102 Wn.2d 810
Kenneth O. Eikenberry, Attorney General, James B. Wilson, Senior Assistant, and Steve Milam, Assistant, for respondent Harborview Medical Center.
Norm Maleng, Prosecuting Attorney, and Fred A. Kaseburg and Stephen Sewell, Deputies, for respondent King County.
Sally Pasette, as guardian ad litem.
BRACHTENBACH, J. — The main issue is a determination of
While this case was on appeal, Joseph Hamlin, the patient/ward, died. Because the issues presented clearly met our criteria for deciding moot cases, we retained the matter for decision. Sorenson v. Bellingham, 80 Wn.2d 547, 558, 496 P.2d 512 (1972).
While Joseph Hamlin is now deceased, we mention the facts of his condition to give perspective to the problems facing doctors, hospitals, courts, families and guardians as they attempt to resolve the issues in cases of this nature.
Hamlin, blind and severely retarded since birth, was 42 years old when admitted to Harborview Medical Center (hereinafter Hospital) on June 15, 1982, for treatment of severe pneumonia and hypoxemia. On June 25, 1982, the Hospital filed a petition in superior court seeking appointment of a guardian for Hamlin because “[the patient was] critically ill and ... [was] incapable of understanding his illness or intelligently consenting to care.” The court appointed attorney Sally Pasette as guardian ad litem. After her investigation, the Foundation for the Handicapped (hereinafter Foundation) agreed to accept guardianship of Hamlin. The Foundation was appointed guardian; the guardian ad litem was discharged.
Hamlin‘s mental age had been assessed at approximately 1 year. His self-help age was assessed at 1.2 years and his I.Q. was estimated to be between 6 and 13. He was able to feed himself with a spoon and drink from a glass; he could indicate his general wants and demonstrate pleasure and displeasure.
After admission to the hospital, Hamlin was placed in intensive care, given antibiotics and placed on a mechanical ventilator. This treatment proved effective and on July 15, 1982, the antibiotics were discontinued and he was removed from the ventilator. During this period Hamlin appeared to
On July 19, 1982, Hamlin suffered cardiorespiratory arrest from which he was resuscitated. The lack of oxygen, however, had completely destroyed cerebral cortical activity. Afterward, his neurological function consisted of only brainstem function (function of the primitive control area which controls breathing, heart rate and other automatic functions located in the region where the spinal cord enters the brain). Technically, Hamlin‘s neurological status was: he maintained cardiac activity; he maintained attempts at breathing; he had slight withdrawal of the extremities to deep pain; and he had corneal reflexes. He did not have any spontaneous muscle movements and showed no evidence of any neurological activity above the brainstem.
The attending physicians testified that recovery of any neurological function by Hamlin beyond his then level of brainstem activity would be unprecedented. Furthermore, removal of life support systems would be expected to cause his respiration to cease in a short time and his body would die naturally. They also asserted that in such cases it was medically and ethically wrong to continue life support systems. Therefore, the medical staff recommended that Hamlin not be resuscitated in the event of cardiopulmonary arrest or respiratory failure, withdrawal of mechanical ventilation and no further treatment with antibiotics.
Hamlin had no family, relatives or close friends with which the medical staff could consult concerning his treatment. The treating physicians asked Hamlin‘s guardian, the Foundation, to consent to termination of the mechanical ventilator. The Foundation refused to consent because it believed it lacked authority to so consent and that consent was prohibited by
The trial court reappointed attorney Pasette as Hamlin‘s guardian ad litem. The guardian ad litem‘s position was that (1) no invasive measures should be taken in the event
The trial court heard testimony from Hamlin‘s two attending physicians, testimony from a physician who examined Hamlin at the request of the Foundation, and also received Hamlin‘s medical records. Those records show that at least 20 physicians examined Hamlin. All physicians reached the same conclusion, to wit: Hamlin was in a vegetative state, completely unresponsive to his surroundings, unable to breathe without a respirator and with virtually no prospect of recovery to his preadmission condition.
Based on the foregoing, the trial court concluded that it was in Hamlin‘s best interests to authorize the withholding and withdrawal of life sustaining treatment. The court entered an order holding:
- In the event of cardiopulmonary arrest or respiratory failure, Hamlin should not be resuscitated;
- Hamlin should not be provided antibiotics in the future;
- The mechanical ventilator should be withdrawn from Hamlin and not reapplied;
- The foregoing order should not be implemented until the time for appeal has expired.
It was stipulated by the parties that the order should not be implemented until the case had been decided on appeal.
I
The first issue is whether the guardian, as part of its duty to care for and maintain the ward, may terminate life support systems.
It shall be the duty of the guardian...
(3) Consistent with the powers granted by the court, if he is a guardian or limited guardian of the person, to care for and maintain the incompetent or disabled person, assert his or her rights and best interests, and provide timely, informed consent to necessary medical procedures
The duties of the guardian are defined in
All physicians who examined Hamlin agreed with the diagnosis that he was in a persistent vegetative state with no prospect of regaining his cognitive functions, maintained by life support systems, and that withdrawal of those systems would lead to his natural death in a short time. Under these circumstances the guardian could conclude that it was in Hamlin‘s best interests to terminate the life support systems. We hold, therefore, that the guardian did have authority to consent to withdrawal of life support systems.
The guardian also argues that
II
We now turn to the more perplexing question of what procedures, judicial or nonjudicial, should be employed in resolving these most fundamental societal questions.
In Colyer, we established a set of procedural guidelines to follow in future cases involving the withholding or withdrawal of life sustaining treatment from an incompetent patient.
If a court determination is required, a guardian ad litem must be appointed to ascertain and protect the interests of the patient. At such a proceeding, the focus would be a determination of the rights and wishes of the incompetent. The appointment of the guardian would be presumed valid, unless there is a showing of clear error or an abuse of discretion, and the conclusion of the progno-
sis board would also be presumed correct. On the basis of information presented to it, the court would determine, in its best judgment, whether the facts demonstrated that the incompetent would have chosen to exercise his or her right to refuse treatment, if he or she were able to do so.
Colyer, at 136-37. The procedures followed by the trial court in this case substantially complied with these procedural guidelines.
A guardian and guardian ad litem were appointed to safeguard the interests of Hamlin. While there was no prognosis committee because this situation arose prior to our decision in Colyer, there was consensus among all physicians who examined Hamlin that there was no reasonable possibility of his returning to a cognitive sapient state. Finally, the trial court, on the basis of the information presented to it, determined that in its best judgment, the facts demonstrated that the incompetent would have chosen to exercise his right to refuse treatment if he were able to do so.
The trial court‘s considerations and conclusions essentially met the Colyer criteria as applied to these particular facts. We hold that the trial court‘s rulings were correct.
The foregoing analysis seemingly ends our inquiry. However, the parties ask us to reexamine our position in Colyer concerning judicial involvement in the decisionmaking process. Specifically, they ask us to reassess the role of a guardian in Colyer-type situations; i.e., total agreement among the patient‘s family, treating physicians and prognosis committee as to the course of medical treatment. Additionally, they ask us to delineate guidelines concerning the role of the court in Hamlin-type situations, an incompetent with no known family, who has never made his wishes known. We limit our discussion to the facts presented by Colyer and this case.
[T]here must be a way to free physicians, in the pursuit of their healing vocation, from possible contamination by self-interest or self-protection concerns which would inhibit their independent medical judgments for the
well-being of their dying patients. We would hope that this opinion might be serviceable to some degree in ameliorating the professional problems under discussion.
In re Quinlan, 70 N.J. 10, 49, 355 A.2d 647, cert. denied, 429 U.S. 922, 50 L. Ed. 2d 289, 97 S. Ct. 319 (1976). Accord, Barber v. Superior Court, 147 Cal. App. 3d 1006, 195 Cal. Rptr. 484 (1983).
A. Colyer-Type Situations
In Colyer, we held that
Guardianship proceedings are often used in cases where patients are incapable of making decisions concerning medical treatment. We do not feel that guardianship proceedings are a necessary predicate to effective decision-making in this type of situation. If the incompetent patient‘s immediate family, after consultation with the treating physician and the prognosis committee, all agree with the conclusion that the patient‘s best interests would be advanced by withdrawal of life sustaining treatment, the family may assert the personal right of the incompetent to refuse life sustaining treatment without seeking prior appointment of a guardian. Accord, John F. Kennedy Mem. Hosp., Inc. v. Bludworth, 452 So. 2d 921 (Fla. 1984); Barber v. Superior Court, 147 Cal. App. 3d 1006, 195 Cal. Rptr. 484 (1983); see also President‘s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research, Deciding to Forego Life-Sustaining
In Colyer we stated that guardianship hearings would not be overly burdensome, but upon reflection, the approach that best accommodates these most fundamental societal decisions is to allow the surrogate decision maker, the family, to make the decision free of the cumbersomeness and costs of legal guardianship proceedings. If all parties, the immediate family, the treating physicians and the prognosis committee, agree as to the course of treatment, a guardian is not necessary. John F. Kennedy Mem. Hosp., Inc. v. Bludworth, supra.
The principal function the guardianship process serves is to protect against abuse by preventing “too precipitous a decision or the appointment of one with less than proper motives.” Colyer, at 130. Arguably then, elimination of the guardianship process would eliminate these safeguards and open the door for abuse. We are convinced that the remaining procedural safeguards surrounding this decision will adequately protect against abuse.
First, this decision can be reached only after there is a medical diagnosis by the attending physicians that (1) the incompetent patient is in a persistent vegetative state with no reasonable chance of recovery and (2) the patient‘s life is being maintained by life support systems. Throughout this initial diagnosis process the treating physicians are under an ethical, moral and legal duty to treat the patient so as to advance his recovery and alleviate his suffering. Second, this initial diagnosis must be unanimously approved by the prognosis committee.
B. Hamlin-Type Situations
In Colyer, we stated in dicta that there will be instances when the detached opinion of the judiciary would be required in the substantive decision to withhold treatment.
For example, if there is disagreement among family members as to the incompetent‘s wishes or among the physicians as to the prognosis, if the patient has always been incompetent so that his wishes cannot be known, if there is evidence of wrongful motives or malpractice, or if
there is no family member to serve as guardian, the court may be required to intervene.
(Italics ours.) Colyer, at 136. This dicta indicates that even if all parties agreed, because Hamlin had no family and has always been incompetent, the judiciary would be required to make the substantive decision to terminate life sustaining procedures. Presented with the actual situation envisioned by this dicta, we believe the judiciary‘s role is not that broad.
Hamlin had no available family. Therefore, a surrogate decision maker must be provided to ensure that Hamlin‘s interests are represented. The surrogate decision maker, like a family, provides an objective viewpoint to evaluate the medical prognosis. More importantly, like a family, the surrogate decision maker guarantees that decisions in cases such as Hamlin‘s remain individualized. Accordingly, when a family is not available and the patient is incompetent, a guardian must be appointed pursuant to
The court will always be involved in the appointment of the guardian. As discussed here and in Colyer, at pages 128-32, the duties of the guardian are to assert the “rights and best interests” of the incompetent person.
However, the court need not always be involved in the actual substantive decision. Therefore, like the familial situation, if the treating physicians, the prognosis committee, and the guardian are all in agreement that the incompetent patient‘s best interests are served by termination of life sustaining treatment, absent legislation to the contrary, there is no need for judicial involvement in this decision.
Thus, we believe the following procedures will best serve all interests involved in this type of case:
- Upon appropriate application, a general guardian must be appointed; the appointment of a guardian ad litem is
governed by RCW 11.88.090 ; - If the treating physicians and prognosis committee are unanimous that life sustaining efforts should be withheld or withdrawn and the guardian concurs, judicial approval is not required;
- Conflicts within or between the hospital, prognosis committee, attending physicians or the guardian should be determined by the trial court.
To the extent that these holdings modify dicta in In re Colyer, supra at 136, it is so held.
III
As a concluding point for both situations, we retain the rule announced in Colyer, at page 136, any participant in the decision, members of the incompetent‘s family, the guardian, the physicians, or the hospital may petition for court intervention. Similarly, if there is disagreement between parties involved in the decisionmaking process, court intervention would be appropriate.
We note that this is the third time this court has been required to deal with these fundamental, indeed life or death, issues. In re Bowman, 94 Wn.2d 407, 617 P.2d 731 (1980); In re Colyer, supra; and this case. We also note that three states have passed natural death legislation that specifically provides for withdrawal of life sustaining treatment for patients who have not executed a natural death directive and are diagnosed as comatose with no reasonable possibility of returning to a cognitive sapient state. See
The problem before us involves social, moral and ethical considerations as well as complex legal and medical issues for which the legislative process is best suited to address in a comprehensive manner. See President‘s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research, Deciding to Forego Life-Sus-
IV
One matter remains. After the Hospital and the Foundation disagreed as to withdrawal of life support, the guardian ad litem was reappointed to represent Hamlin‘s interests in superior court. The order reappointing Ms. Pasette authorized payment at $35 per hour for 10 hours’ work. Prior to trial, an additional 20 hours of service at $35 per hour was authorized. This order was for the time spent in trial preparation and did not authorize any additional hours of service for her trial participation.
The guardian ad litem proposed an order authorizing additional funding which was reserved by the trial court for a later point in the trial. At the close of the trial, the court had still not acted.
Meanwhile, the Foundation appealed to this court. Ms. Pasette continued, in good faith, to represent the interests of Hamlin on appeal. Only after filing her opening brief did she learn that the County was not going to pay her costs on appeal because it argued it was not responsible for the costs of guardians ad litem at the appellate level. The County‘s position was that the Supreme Court had funds for indigent appeals and would pay Ms. Pasette‘s costs. Accordingly, at this point Ms. Pasette obtained an order of indigency nunc pro tunc to October 1982 to allow her to seek appellate costs from this court. See RAP 15.2(b), (c).
Despite not knowing which entity, the County or the State (if either), would pay for her services as Hamlin‘s guardian ad litem on appeal, she filed two more briefs with
The County does not dispute that Ms. Pasette is entitled to her fees and costs on appeal. To hold that a guardian ad litem must appear on appeal without any prospect of compensation would detract from the quality of service to the incompetent and the court, ultimately leading to a scarcity of guardians ad litem willing and able to accept appointment. Cf. Honore v. Board of Prison Terms & Paroles, 77 Wn.2d 660, 679, 466 P.2d 485 (1970). As guardian ad litem, Ms. Pasette served both the public interest and Hamlin‘s interest. See Wilmington Med. Ctr., Inc. v. Severns, 433 A.2d 1047 (Del. 1981). Therefore, we agree that she should be compensated from public funds.
An alleged incompetent or disabled person is entitled to independent legal counsel at his own expense to represent him in the procedure: Provided, That if the alleged incompetent or disabled person is unable to pay for such representation . . . the county shall be responsible for such costs . . .
The guardian ad litem shall receive a fee determined by the court. . . . [If] the court finds that such payment would result in substantial hardship upon [the incompetent] . . . the county shall be responsible for such costs . . .
The County argues that its liability under
While
While
WILLIAMS, C.J., UTTER, DOLLIVER, DIMMICK, and PEARSON, JJ., and CUNNINGHAM, J. Pro Tem., concur.
ROSELLINI, J. (dissenting) — The majority departs dramatically from the issues presented in this case, and needlessly resolves questions not before it. Because I believe the court‘s discussion of court intervention is both unnecessary and unwise, I dissent.
The unnecessary nature of the majority‘s discussion is obvious. As the majority observes, Joseph Hamlin “had no
The majority, after properly resolving this issue, then seizes the opportunity to discuss generally the necessity of guardianship proceedings and court intervention. The majority concludes that if the patient‘s medical prognosis board and the family all agree, neither a court appointed guardian or court intervention is required. Where the patient has no family, the majority allows these decisions to be made by the guardian and the medical staff.
The majority adopts this position without exploring the ramifications of its rule or the wisdom of waiving court intervention. Closer analysis of these issues, I believe, demonstrates the dangers of a court attempting to resolve so complex a problem with such simple rules.
First, the majority‘s decision to circumvent court appointed guardian proceedings negates the safeguards inherent in the guardian statutes and authorizes, illegally, a person other than the patient to exercise the patient‘s right to refuse treatment. In re Colyer, 99 Wn.2d 114, 660 P.2d 738 (1983) established that the right to refuse treatment is a corollary of the constitutional right to privacy and the common law right to be free from bodily invasion. Colyer, at 121. This right, however, is personal to the patient. Only the guardian statute,
Moreover, competency is a legal determination which
The majority‘s decision to waive the guardianship proceeding is also unwise in that it removes important safeguards to the decisionmaking process. Without a guardianship proceeding, the decision to terminate life support systems may be made by family members who have improper motives or whose views do not reflect those of the patient. Furthermore, neither the fact that all family members need to agree nor the concurrence of the medical prognosis board adequately protects against this eventuality. Where family members all stand to benefit by termination, they would naturally agree and present a unified front.
Moreover, medical professionals cannot guard against improper motives on the part of the family because they are neither suited by training nor situation to discover such impropriety. Doctors are trained to discover and treat disease and trauma, not to discern the truth of factual assertions. Also, a doctor may not, without significant impertinence, inquire as to the family members’ financial relationships to the patient. In fact, a doctor may not be able to even ascertain if all family members have been consulted or even notified of the event. Distant siblings or offspring may be omitted from the decisionmaking process until it is too late for the decision to be reversed.
The majority‘s opinion ignores these dangers; I cannot.
On the other hand, I am not unsympathetic to the majority‘s desire to mitigate the legal formalities a grieving family must confront. Alternatives to the all or nothing rule propounded by the majority exist, however. For instance, in cases where family members can demonstrate the patient‘s intent to vest them with authority to act in this manner, guardianship proceedings might be unnecessary. Such manifestation could be more informal than the Natural Death Act documents but still vested with some safeguards. A
I believe the medical profession, the Legislature and the courts must pursue all available alternatives with full knowledge of each solution‘s implication. Because the majority attempts to resolve these issues without a proper case before it, I dissent.
DORE, J., concurs with ROSELLINI, J.
