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In Re Fiori
652 A.2d 1350
Pa. Super. Ct.
1995
Check Treatment

*1 a trade customers’ names constituted compilation their secret, equitable Renee to appropriation of which entitled chancellor, however, injunction based relief. The vacated on the of Renee. Conse- finding part of “unclean hands” on without we affirm the Order December quently, of the “clean hands” issue. Wecht PG reaching merits (1986) Co., 493, 495, 510 A.2d Pub. Pa.Super. (“We when its is affirm trial court a decision theory regard any legal on without ground correct relied.”) which trial court ground upon Order affirmed.

652 A.2d 1350 FIORI, Incompetent. Joseph Adjudged In re Daniel Appeal ATTORNEY of PENNSYLVANIA GENERAL.

Superior Pennsylvania. Court of

Argued Sept. 1994.

Filed Jan. *3 for Unger, Philadelphia, appellant.

Sue A. Sherman, Schaeffer, Doylestown, Rosemary John N. participating party. Hoffman, PA B. for amicus curiae Med. Harrisburg,

Robert Soc. Meisel, Curiae, University

Alan for Amicus Pittsburgh, Med. Ctr. Pittsburgh CAVANAUGH, ROWLEY, Judge,

Before President CIRILLO, OLSZEWSKI, BECK, WIEAND, McEWEN, POPOVICH, KELLY and JJ.

BECK, Judge. appeal requires sustaining

This that we decide whether life in the of a tube be re- gastrostomy treatment form should in twenty years moved from a who for almost has been patient cognitive powers state with no and no persistent vegetative with the trial court that the life recovery. agree chance of We and, therefore, be terminated sustaining treatment should court. affirm trial family of a member that consent close

We conclude is sufficient physicians of two along approval qualified with in a long-term to a sustaining person terminate life treatment involvement. We court state without persistent vegetative is limited to the today decision further our emphasize vegeta is in persistent where category patient cases recovery chance of cognitive power state no no tive with a view as to expressed such has not patient previously where terminated.1 sustaining should be whether life all rise case as well as such to this giving facts are tragic. treatment cases of life termination issue, Fiori, is 43 whose future is Joseph Daniel incidents, one in old. As a result two successive years Mr. old one twenty years when Mr. Fiori was Fiori been was Since Mr. has Fiori rendered comatose. vegetative known as a neurologic persistent condition Director, Health, 497 Dept. Missouri state. Cruzan (1990), 111 L.Ed.2d 224 United 110 S.Ct. U.S. Supreme provided following well-accepted States Court state: description persistent vegetative of a body functioning which is en- Vegetative state describes maintains tirely temper- of its internal controls. It terms pulmonary ature. maintains beat and ventilation. It heart activity reflex activity. It It maintains digestive maintains responses. and nerves for low level conditioned muscles *4 But of either self-awareness there is no behavioral evidence surroundings of the in a learned manner. or awareness 2846, n. n. 110 S.Ct. at 1. Id. words,

In Fiori’s is alive and although body other Mr. has so stay years, cognitive for his function been well alive required category Despite court in this the fact that involvement not case, practical uncertainty may arise as a matter we realize event, guidance. we parties In such an endorse will seek court Opinion pro- Judge Concurring which forth in Wieand’s standard set compassionate for the trial court vides a common sense standard follow. that he not know he is alive. He thoroughly destroyed does Thus, pleasure. although no and he feels no he pain feels tube, he pain presence gastrostomy realizes no from if There is equally pain would realize no it were withdrawn. in Mr. Fiori’s medical condi- dispute no this case that this is tion, condition will never dispute and there is also no that his improve. Mayo Nursing

Mr. Fiori has for been a at the years in and has received Philadelphia and Convalescent Center muscu- capacity voluntary excellent care. he has no Since movement, he is his medi- including swallowing, provided lar cations, through surgically fluids and nutrition a tube inserted mother, tube. His Rose- gastrostomy his stomach called Sherman, was of Mr. appointed guardian marie who person by Fiori’s court order entered has been him visits him several throughout devoted to his ordeal. She every day, nursing personally times his care and supervises him to insure that his provides supplies necessary -with the very care is the best. that her son’s February Mrs. Sherman determined

treatment, tube, should be terminated. gastrostomy i.e. the without nursing comply request The home refused to with her in the Court of Common petition a court order and she filed directing an order County requesting Pleas for Bucks Attorney home to terminate the treatment. nursing and, to its appeared proceeding pursuant General expert appointed medical was request, independent from Mrs. testimony examine Mr. Fiori. The trial court took neurologist from a who examined Mr. Fiori. Sherman and had. report independent The court also considered the prior The evidence revealed that to Mr. expert. injuries specifically Fiori’s he had never commented on how he if in persistent vegetative would wish to be treated he were However, state or rendered his moth- incompetent. otherwise understanding er testified that based on her of her son and his no competent attitude toward life while he was her son would alive in his condition. longer kept present wish to be *5 it insufficient evidence that had The trial court found his treat- concerning Mr. Fiori’s own decision determine what Thus, the applied if court competent. were ment would be he standard,” it which described “objective an what it termed follows: is to be self-determination] right [to

If the of the exercise an by has been made expression no maintained where treatment, place it must take as to incompetent patient implement analysis which seeks to the context of within by interests reference is in best person’s what that assessing criteria.... objective societally ‘[I]n shared would be or course of treatment procedure whether a interests, taken into decision maker must best patient’s suffering, preserva- as the relief account such factors quality as well as functioning, tion restoration extent of life sustained.’ Memorial Op. (quoting Foody at 8 Manchester

Trial Court (Ct.1984). 713, 721 482 A.2d Conn.Sup. Hospital, satisfied, the trial court entered Finding this standard gastrosto- authorizing the discontinuance Final Decree sustaining procedures. my tube and all other life following and raises the Attorney appealed, The General issues for our review:2 failing appoint court erred orphans’

1. Whether the patient’s comatose interest ad litem to guardian represent should be support whether life in a to determine proceeding withdrawn? by authorizing a court erred orphans’

2. Whether the death without result process which would would wish convincing evidence he clear and requiring treatment withdrawn? have life Society, Pennsylvania Medical curiae briefs were filed The Amicus Conference, University Pittsburgh The Pennsylvania Catholic The Ethics, Pennsylvania University Medical Center for Medical Center, Pennsylvania Hospital and the Ethics and Association Nursing Group. In cases Advocacy Home Action Task Force of the this, implicate concern and which issues of broad social such as raise considerations, purely legal the submissions of such more far than helpful. particularly are amici We need not separately address the Attorney General’s first *6 issue. Since ultimately we hold that no legal proceedings are in necessary great majority involving cases the termi- nation of life sustaining treatment in persons Mr. Fiori’s condition, and that no such was proceeding actually necessary case, in this we obviously see no need for the appointment of a guardian ad litem.

The Attorney General’s basic legal position on the issue presented is that sustaining treatment should not be in terminated the case of any Mr. Fiori or other person without clear convincing and evidence that termination of treatment would be the choice that if person would make he or Moreover,, she were competent. the Attorney General would have require this court that the only evidence of the patient’s wishes that will meet this evidentiary prior standard is a express statement the patient. Finally, the Attorney Gen- eral would require that a court proceeding be conducted in every such case so that the determination of whether above-stated test had been met could be made the court. adopt

We cannot the Attorney General’s suggested ap- proach crucially to the important presented issue by this case. outset, At the we note that the Attorney General frames the issue far broadly. too The discussion of this case should be facts, i.e., limited to its what standard should be in applied case of a competent once adult in who is now a persistent who, vegetative state and when competent, directly had not expressed a view on whether he would want life sustaining circumstances, treatment to be terminated under these but who has a close relative who believes he would want his treatment development terminated. The of the law as to other types cases should wait until another day. These cases arise from greatly differing factual scenarios. Termi- nation of issues in arise cases involving never adults, competent competent once and incompetent now adults, ill terminally never competent children who have been birth, severely impaired since who, and adults like Mr. Fiori although who, once competent, longer no are while not ill, terminally are in a persistent vegetative state. As to life have measures, in will patient some instances the will view; patient or her others articulated his clearly articulated; view, clearly has been but it not expressed have others, view. and, any have patient expressed will not to deal attempt It is and inadvisable inappropriate both specific outside possible with of these scenarios each pres- such case might facts considerations each matrix of Peter, See, 108 N.J. 529 A.2d e.g., ent. Matter of (1987) elderly (setting terminating treatment of standards state and persistent vegetative home in a nursing patients other involving types from those distinguishing such cases situations); Conroy, 98 Matter patients distinct (1985) appli- (distinguishing standards N.J. A.2d younger ill from that of terminally elderly cable to *7 vegetative patient). state persistent to the only to decide relates upon The issue we are called competent, of to a once sustaining termination life treatment who incompetent, persistent vegetative now adult in a state want view on whether he would clearly expressed has not continue, close relative sustaining measures to but whose his terminated. believes that he would now want an examination begin analysis our the issue with We protect right upon we are called underlying —the in regard acceptance right to self-determination many rejection Although of life medical treatment. right for existence of a to self-determi grounds different asserted, no such nation there can be doubt that (Minn. Torres, 357 See In re N.W.2d 332 right does exist. 1984) grounds law (citing constitutional and common both self-determination); right Foody v. Manchester existence of (1984) 127, 40 482 A.2d 713 Hospital, Conn.Sup. Memorial (same). recent Supreme Careful review of the Court’s Cruzan eight found a federal justices decision reveals that nine in refusing Due interest unwanted liberty Process 287, Cruzan, 278, 110 2851; at 497 at at treatment. U.S. S.Ct. 302, (O’Connor, J., concurring); at 110 S.Ct. 110 S.Ct. at 2856 JJ., (Brennan, Blackmun, dissenting); at 2863-64 Marshall (Stevens, J., also 331, dissenting). 110 at 2879 See S.Ct. (1993) Mack, Mack v. 329 Md. 755-56 A.2d (noting Supreme justices’ apparent acceptance liberty Court treatment). interest in rejecting own has on the Supreme recently Our Court commented right specifically including right constitutional privacy, decisions, important personal to make as follows: longer any There is no that the States question United provides protection right Constitution for an individual’s privacy. types At least two distinct interests privacy have is the individual interest in recognized. been “One matters, avoiding personal disclosure of and another is the in independence making impor- interest certain kinds of recognized tant decisions.” This Court has these same Pennsylvania interests under the Constitution. Constitution, Pennsylvania Under the to be let right alone has also been recognized. Similarly Pennsylvania, However, this is not absolute. has not Pennsylvania adopted approach priva- flexible its state constitutional cy analysis. only Under the law of this Commonwealth state compelling privacy rights. interest will override one’s Center, 426, 434, Stenger Lehigh Valley Pa. Hospital (1992) (citations omitted). 796, 800, A.2d See also Board, McCusker v. Workmen’s 536 Pa. Compensation Appeal (1994) (“[cjentral aspect 639 A.2d 776 to this privacy right government sphere is the intrusion of into the *8 marriage family by prohibiting criminalizing and or certain decisions”).3 kinds of right

The to control and refuse medical is treatment also Commonwealth, founded on the common law of this which has that other than in an long provided emergency, medical treat- may given ment not be without the informed consent of the right privacy upon 3. The is founded both state and federal constitu- guarantees. purposes Pennsylvania tional For of the Constitution the I, right grounded privacy is in Article sections 1 & 8. We find that right concerning the to self-determination as to decisions medical aspect privacy right guaran- treatment emanates from that which Pennsylvania right important personal tees citizens the to make deci- sions.

619 Raeuchle, 394, 404, 604 A.2d v. 529 Pa. patient. See Moure Yohe, (1992) alia, 412 Pa. v. (citing, inter Smith Pa. 223 A.2d (1963); Gray Grunnagle, 423 194 A.2d 167 v. (1966)). the of treatment that exceeds Provision medical Id. in tort. patient’s consent be actionable scope of the his knowl- patient not “touch” the without physician may rationale This reflects the common law’s edgeable consent. treatment. accept reject that is free the however, as to Clearly, the self-determination has state one’s treatment is not absolute. The own medical the involving in cases termination implicated interests are classically sustaining These interests have of life treatment. in the interests consisting been as of state’s identified suicide, protection life, prevention preservation See, profession. third and the of medical parties integrity Saikewicz, State e.g., Belchertown School Superintendent of Torres, (1977); In re N.E.2d 417 373 Mass. 114, 660 (Minn.1984); Colyer, In re 99 Wash.2d N.W.2d 332 found, (1983). case in this aptly P.2d As the trial court suicide, prevention protection in the the state’s interests implicated. not Sui of third and medical ethics are parties, life, an act of which taking cide of one’s own is the volitional capable. parties not There no third Mr. Fiori is even are Lastly, Mr. has no protection dependents. need of as Fiori As question. medical is not integrity profession Society Pennsylvania brief filed Medical the amicus no indicates, Fiori’s presents the termination Mr. evaluating ethical All doctors involved problems. medical vegetative he state persistent Mr. concur that is in Fiori case, states: from he will not recover. In such a amicus which of life support ... ethical the withdrawal principles treatment, of nutrition including provision here, fluids, when, recovery hope there no well- obviously the decision is made concerned based exercising a choice surrogate informed decisionmaker or, be discerned patient’s they on the when can preferences determined, if best cannot based on they interests. *9 also, Pennsylvania Society p.

Brief of The Medical at 16. See Grant, 545, 747 P.2d e.g., Guardianship In re 109 Wash.2d (1987) Affairs, (citing AMA Council on Ethical and Judicial Medical Treat- “Withholding Withdrawing Life-Prolonging (no ment,” 15,1986) Mar. medical ethical barrier to discontinu- coma- ing indisputably irreversibly to concur). patient responsible patient tose where all for care of Thus, with to our only any pertinence state interest interest in the of life. inquiry general preservation is interest, Although validity there is no doubt as to the this is, is the force or of this interest question import the real what in comparison right to the self-determination? held, so, generally appropriately

It has been that the in preservation outweigh state’s interest of life does not competent right individual’s to self-determination. As the Jersey Supreme New Court has stated: not involve the of the actual or protection cases do decisionmaker, than potential life of someone other in preserving state’s indirect and abstract interest the life of to the competent patient generally gives way stronger personal directing much interest the course of his own life. balance, right ordinarily

On to self-determination interests, and outweighs any countervailing competent state permitted are to refuse medical treat- persons generally ment, of death. even at the risk A.2d at In re Conroy, 98 N.J. at Cf. (blood Dorone, (1987) Estate 517 Pa. 534 A.2d 452 emergency life-threatening transfusion given despite previous religious objection situation his declaration of transfusions). However, continued, as the court the situation Conroy of an changes incompe- when self-determination tent person issue: questions patients

More difficult arise the context of to make incompetent particular who are treatment decisions

621 for Such unable to exercise direct- patients themselves. are to or In right accept their own refuse medical treatment. ly behalf, substitute right to exercise that on their attempting simultaneously decisionmakers must seek to both respect aspects patient’s right to self-determination —the cases, live, to die of natural right right, and the some causes without medical intervention. 356, A.2d

Id. at 486 permit court asked to every case where a has been patient life from a in a sustaining withdrawal of treatment state, if it the court has held that can be persistent vegetative patient’s it have been the definitely determined that would treatment, patient’s right not receive then the desire such interest and the outweighs any to self-determination state Mack, See, e.g., be withdrawn. Mack v. 329 treatment (1993); 188, 744 v. 618 A.2d Rasmussen Mitchell Md. 207, (1987); Ariz. Fleming, 154 741 P.2d 674 McConnell Inc., 692, 209 Conn. 553 Beverly Enterprises Connecticut, — (1989); Browning, 596 In re 543 So.2d Guardianship A.2d (Fla.1990); 4 In re (Fla.Dist.Ct.App.1989), aff'd, 258 568 So.2d 780, 33, 133 Ill.2d 139 Ill.Dec. 549 N.E.2d Longeway, Estate of (1989). Thus, the to self-determination has uniform right 292 and, if been own ly incompetency held survive ascertained, any outweighs can state desires be interest, including the of life. preservation

However, as to to do in a question the difficult arises what others, this, many like like where the case so while specific competent simply expressed had never clear kept to whether he or would wish to be alive preference as she rare totally non-sapient excep- for decades state. With tions, confronted with such a situation have stated that courts they permit under certain circumstances would the decision as sustaining to whether life treatment should be terminated judgment” by made through be exercise “substituted Jobes, 108 patient’s family guardian.4 Matter N.J. Missouri, exceptions 4. Two such are the courts of New York and both of appear permit which not to the termination of convincing except can be evidence that where it shown clear and 622 (1987); Ill.2d Longeway, Estate A.2d 434 Rosebush, (1989); In re N.E.2d 292

139 Ill.Dec. (1992); Conservatorship 491 N.W.2d Mich.App. (Minn.1984). Torres, Court Supreme The 357 N.W.2d 332 stated clearly most perhaps eloquently has Jersey New is to surrogate decisionmaker judgment how the rendered, follows: clearly expressed, are not incompetent’s wishes

where patient’s personal considers the decisionmaker surrogate surrogate considers guidance. system value *11 medical about and reactions to statements patient’s prior that the issues, patient’s personality facets of the all the with, course, refer- particular is familiar surrogate with — theological, and philosophical, relevant ence to his or her patient if he or she were been the desire of the such would have Harmon, (Mo.1988), competent. 760 S.W.2d 408 See Cruzan aff'd Health, Dept. 110 S.Ct. 497 U.S. sub nom. v. Missouri Cruzan O’Connor, (1990); 72 N.Y.2d In re 111 L.Ed.2d (1988). 607, 534 N.Y.S.2d 886 N.E.2d Cruzan, Supreme Court in reviewing the decision of the Missouri In may constitutionally Supreme held that a state States Court the United patient's convincing evidence of the impose requirement of clear and How- expressed treatment. previously desire as to own ever, requirement was constitutional- court did not hold that such the Cruzan, As U.S. at 110 S.Ct. at 2858-59. ly mandated. concurring opinion in opined in her Justice O’Connor Cruzan: preclude a future determination Today’s decision .... does not implement of a requires the decisions the States Constitution surrogate. prevent it States from patient’s duly appointed Nor does incompetent approaches protecting an individu- developing other for treatment____ Today only refusing we decide liberty interest in al’s Constitution; the more practice does not violate the that one State’s safeguarding appropriate procedures challenging crafting task of ‘laboratory’ liberty to the incompetents’ interests is entrusted in the first instance. States.... Id. case, recently the Missouri Court of Interestingly, in a more decided involving holding Appeals appeared limit the to a case Cruzan Warren, 858 withholding hydration and nutrition. In In re of artificial (Mo.Ct.App.1993), permitted the use of a substi- the Court S.W.2d 263 involving severely judgment in a case or best interests standard tuted standard, permitted the elderly patient. Employing this the court ill chart, patient’s finding order on the entry of a "Do Not Resuscitate” likely efforts in the patient would not survive resuscitation that the arrest. Id. at 264-66. event of cardiac course medi- extrapolate order to what ethical values—in choose. patient cal treatment would (footnote Jobes, 415, 529 108 N.J. at A.2d Matter omitted). addition, considering this question of the courts many

In for a court to intervene found that there no need have disagreement there is be- decisionmaking process unless this usually are identified as parties, tween the interested who treating evaluating involved professionals See, Jobes, e.g., family guardian. patient’s Rosebush, supra; supra. require judi contrast, General would Attorney a standard of every impose and would

cial intervention case convincing of a prior clear and evidence requiring decision patient that he or she would want statement express presented. circumstances terminated under provide General maximum Attorney purports While im protection to the self-determination standard, in such a standard will posing adoption this fact It must be recalled that under objective. not achieve that law, convincing has been Pennsylvania clear and evidence virtually that is See Leonard indisputable. defined evidence Evidence, Poulin, § Pennsylvania 303.2 Packel Anne *12 (1987). If, to the example, apply for we were clear one, like the convincing test a case instant it would evidence life court the termination of impossible approve for a Fiori, him to Mr. even if those closest to sustaining treatment they is he would want. Unless were convinced that what statement, one, in testify or to an oral produce could a written said, want,” I is could nothing which Mr. Fiori had “This what His not be right protect be done. to self-determination would ed, might negated. but rather well be

Furthermore, life the time of the decision to withdraw for fraught anxiety is one with sustaining pain the with a patient. compound suffering those who love the To unnecessary. special What court is insensitive and proceeding painful have in these knowledge insight does the court patient sufficiently protected Is not the intimate situations? by two doctors? Unlike surrogate’s approved decision by through involvement Attorney General we find state of the individual’s overly courts intrusive and violative by rights adequately represented are privacy. case, clearly quali- in mother. is surrogate, this She express and can what judgment fied to exercise substituted mother, her son given Mr. Fiori would want. His who has decades, all those almost two who has taken devoted care for done, who has consulted her to consider what should be years heart, her is here to tell us that religious advisors and own All time, say “enough enough”.5 son would point this her Fiori, Mr. the inde- including the doctors who have evaluated court, agree the trial pendent physicians appointed disputes state. No one persistent vegetative his irreversible answered. questions these facts. All the have been pertinent terminated, arid not because a court The treatment should be so, express Mr. mother is able to says but because Fiori’s and two attest to physicians what her son would have wanted be in a fact that for remainder of his life he would vegetative state. persistent conclusion, on the heavily this we have relied reaching of our many of the courts of

guidance provided by opinions conclusion. In jurisdictions who have reached the same sister carefully opinion on the crafted we have relied particular, Jobes, Jersey supra. of New Matter Supreme Court Garibaldi, that in majority, for the Jobes held writing Justice in a competent persistent of a once adult the case specific view as to expressed state who had never vegetative treatment, the treatment could nevertheless be in accordance under certain circumstances and terminated certain procedures. with

First, has an Justice Garibaldi found that while state life, preservation interest in the undeniable Attorney suggests fact is an 5. The General Mrs. Sherman may be motivated a desire inappropriate decisionmaker because she hand, We, gain. personal on the other have no such financial *13 court, Sherman because the trial who saw heard Mrs. concern acting good testify, adjudged entirely faith. her to be sincere individual’s to weaken and the ... those interests bodily “as invasion stronger degree the privacy becomes increases and issue] medical treatment at [effected sapient recovery cognitive, state] prognosis [for dims.” in which to conceive a case the State

... difficult [It is] strong enough have an interest subordinate could in a persistent not to sustained right to choose patient’s vegetative state.” (citations Jobes, 413-14, A.2d at 444 108 N.J. at

Matter of omitted) Peter, 365, 380, A.2d 108 N.J. (quoting Matter of 647, (1987); Quinlan, 355 A.2d re 70 N.J. N.J., Garger sub 429 U.S. 97 S.Ct. cert. denied nom. (1976)). 319, 50 L.Ed.2d 289 only way that appropriately

The Jobes court concluded of the fully predominating right incompetent effectuate the to determine his own course of treatment was patient on patient’s of substituted judgment exercise permit course, would, solely judgment The substituted aim behalf. determining have chosen for at what the would himself concerning on medical issues prior expressions based view philoso- if and on the patient, any, personality, entire 413-15, system patient. and value Id. at 529 A.2d phy determination, with importance Of is the Jobes court’s equal members, family that entirely agree, patient’s which we spouse, not to the adult child or usually parent, but limited parties are the to render substituted sibling, appropriate 413-20, 444-47. so Id. at 529 A.2d at The court judgment. following cogent for the reasons: found has an intimate un- invariably patient’s family Almost general attitudes and derstanding patient’s is in to know the position view and therefore the best world control the motives considerations would medical decisions.

626 qualified are best to make substituted

Family members not because of incompetent patients only for judgments life, but also grasp patient’s approach their peculiar him or her. special of their bonds with because in deci- family medical treatment importance “The sions is axiomatic. realm of traditionally respected private has

The law cannot enter.... believe life which the state We family family in the respect tradition of for and confidence that this to the treatment of the sick.” ground approach should our Farrell, 415-16, In (quoting, part, 529 A.2d at 445 re Id. at (1987)). 335, 355, 529 A.2d 414 108 N.J. court, that

Finally, require like the Jobes we too would deci- surrogate not be terminated unless the treatment statements of two doctors sionmaker has obtained written that the patient’s certifying to evaluate the condition qualified state without reasonable persistent vegetative is patient 420-23, If 529 A.2d at 448. recovery. Id. possibility also physician should patient attending physician, has an Thus, appropriate professionals submit such statement. as to the patient’s render the crucial decision will condition. course, family where there is no

Of there will be instances sufficiently judgment close to the to render a member behalf, in the patient’s on his or her or the doctors involved actually that the are not at- perceive family care members choice, own or there is a tempting to effectuate no been among family designat- members and one has dispute In in an advance directive. such ed as the decisionmaker (cid:127) situations, should not be terminated without aid the court. guardian of a and the appointment followed, If the are and none foregoing procedures exist, extraordinary ap above-listed circumstances not of a to termination of treatment proval prior court we has this, merely suspect confirm what required. we families doctors practice by many followed fact been families, in have made decisions been years. These advisors, in privacy consultation with doctors other In re interference. See Estate governmental without Longeway, Ill.Dec. Ill.Dec. N.E.2d (1989). *15 numerous that have found that agree

We with the courts no role in a case there judiciary simply play the has to where and what loving family, willing able to assess the is treatment, necessary or all have as to his her would decided hand, no rightfully medical confirmations are and one disputes family’s the interested the treatment See, Jobes, 415-20, 529 445- e.g., 108 N.J. at A.2d at decision. Rosebush, 47; re 633 In N.W.2d Mich.App. Grant, (1992); re Guardianship 109 Wash.2d (1987). Those with view P.2d 456-57 this disagree who case the every who favor court intervention in often cite and for the this patient. Underlying need court to the protect is the that can the philosophy only provide rationale courts safeguards protection assure of life. This is a necessary to It and view. the essential and unhealthy narrow violates . family. the is another respect yet expansion traditional for It in our are the society repository of the idea courts life protect and the institution available to human only wisdom unarticulated, fear that dignity. underlying and There is guardian the court ad by perhaps without intervention other take to end parent might litem that relative action in rare personal gain. this cases have While fear foundation, its two some it loses force when consent of requirement is a before life physicians necessary treatment terminated.

Moreover, not invasion such fears do of the state justify of the where such private family important into realm be The law of personal decisions should made. this Common- and has sanctity family long respected has wealth to it the to privacy preserve to its sought protect for the Certainly respect this far as possible. itself as govern to decision as intensely private extend to family should reduced tragically has been member who family whether a in that to live state.6 wish to continue state would vegetative point one further need address concluding, Prior to we curiae. amicus and certain Attorney General raised new Ad is made that Commonwealth’s suggestion Act, seq. § et 20 Pa.C.S. Health Care vance Directive for (1992), guardianship amendments to our certain recent then expressly implicitly, if not support, lend statute We, other on the Attorney General. taken position or the statute hand, guardianship in either the nothing find “Act”) (the that rea Act for Health Care Advance Directive in this case or dictating as a result could be construed sonably our decision- guide standard general providing even only with the establishment The Act is concerned making. may execute competent persons to which pursuant standards they wish stating directives what advance binding valid and in the event that their medical regarding done *16 in a terminal and are incompetent in the future become they 20 Pa.C.S. unconscious. are permanently condition or §§ 5405. today’s are points many of families quite correctly out that The dissent

6. require intervention would court of this the dissent unstable. Because majority in total majority The every would not. case. The question raised about that where there is agreement with the dissent judgment making or the substituted appropriateness of the relative relative, adjudicated by the those cases must motives of the questions such hospitals ethics committees in which Most have court. position hospital itself would be in and the addressed would.be course, any patient’s relatives and of the court intervention. Of seek be able decision-making process would also any in the doctor involved necessary. aid of the court where to seek the require in the holding majority does not court intervention which are require it in those cases questions but does absence of such sanctity strongly and the. majority upholds doubt. The not free from safeguard family the law should cherish privacy of the and believes family with life decency of a faced family integrity. The wisdom and to be tested in court. decisions do not need and death in the Act that fact, indicia we find clear for the termi standards not to establish intended legislature case, instant like the any sustaining life nation of by the had not been executed one, directive an advance where no presumption that it “shall create provides The Act patient. who has not executed any person the intent concerning sustain withholding of life consent to the use or declaration to or a state of a terminal condition in the event ing procedures 5402(b). The § 20 Pa.C.S. unconsciousness.” permanent stating that scope provision a limitation of Act also contains or any existing rights supersede “shall not impair the Act § in this Id. at chapter.” not addressed responsibilities rights not address the specifically Act does Since the directives, advance who never executed incompetent persons now are rights persons’ under section 5412 those presumably It is of the Act. passage they what were before exactly time, state, what those for the first in this case to our task Elston, 858 S.W.2d Accord DeGrella v. rights are.7 will” statute construing Kentucky “living (similarly (Ky.1993) Directive Pennsylvania Advance like that using language that does not dictate non-exclusive enactment Act to be a treatment cases where in termination of result will). living not executed a had pertinent is the be viewed as only aspect of the Act that 7. The general findings forth its legislature sets initial section where the statute, underlying as follows: the new qualified competent adults have a Assembly finds that all The General relating care. This to their own medical right to control decisions society, maintenance subject such as the right is to certain interests preservation profession and the standards in the medical of ethical technological proce- protection life. Modern of human beyond natural possible prolongation of human life dures make suffering procedures to an individual application of some limits. The dying may loss of process of cause and uncomfortable a difficult precarious and only continuation of a patient dignity and secure prolongation of life. burdensome 5402(a). § 20 Pa.C.S. already they we findings pertinent confirm what are insofar These of medical concerning right to self-determination have concluded *17 adults, interests in possessed by competent the state all treatment life, modern and the effect of preservation and medical ethics They do not prolongation of human life. developments on the decisionmaking in this case. assist our otherwise statute, as guardianship also made to the Reference is seq. § 5501 et Attorney- The in 1992. 20 Pa.C.S. amended relating of the statute portions those refers to General guardians incapacity appointment and determinations case his to this approach find support appears and convincing and that “clear requires statute that portion adjudi- person before a is presented be incapacity evidence” guardian appointed. and a incapacitated cated statute, we the guardianship reviewed Having thoroughly also that it this case but does not control only find that it not fact The presented. on the issue real guidance no provides convincing clear and requires statute guardianship that to the standard has no relevance incapacity evidence sustaining life to terminate deciding- employed to be proof Moreover, nothing guardianship in the there is treatment. necessary to termi- judicial approval that suggest statute fact, that those subsections sustaining life treatment. nate only specifically be may and duties powers list be or that never a court order guardian by to a granted the termination of no reference to make guardian granted (f). 5521(d) § & 20 Pa.C.S. treatment. sustaining life in this presented the issue not address simply does statute case. that all correctly decided

The trial court to Mr. Fiori should rendered being presently is affirmed. of the trial court The order terminated. CIRILLO, WIEAND, ROWLEY, and Judge, President KELLY, JJ., OLSZEWSKI, join Opinion. this J., in which WIEAND, Concurring Opinion files ROWLEY, joins. Judge, President OLSZEWSKI, JJ., Concurring each file

McEWEN Statements.

POPOVICH, J., Concurring Dissenting Opinion. files a CAVANAUGH, J., Dissenting Opinion. files a *18 WIEAND, Judge, concurring. of a who has been in a

May family patient, persistent vegetative years recovery state for several with no chance for previously regarding and who has not recited his wishes use of life at a time when he procedures and competent, permitted hydra- was to withdraw nutrition I supplied by agree majority tion artificial means? with the that, join a decision possible, and its determination when such by family can and should be made a close member and two qualified physicians necessity obtaining without the for a court instances, however, In many order. the circumstances will I write require that a court intervene. This was such case. therefore, which separately, to elucidate those considerations of a trial court and the review to be should affect the decision court. appellate conducted Joseph Mayo Nursing

Daniel Fiori resides at and in Philadelphia. incompetent Convalescent Center He became age twenty-one, in 1971 at the when he suffered severe damage motorcycle accident. He was confined to a brain only express wheel chair and could himself limited verbal time, and At this his bodily gestures. sounds and facial abilities, limited, were functional. cognitive though In him in a injury, 1976 Fiori suffered a second which left persistent vegetative state. This condition has continued until present. Although primitive his heart still beats and some stimuli, respond applied cognitive reflexes still all brain thought processes inoperable.1 functions and are He feels no pain pleasure, or and he is unable to interact his environ- think; ment or to communicate with others. He cannot he patient persistent vegetative 1. A in a state is not “brain dead.” Al- though inoperable, most brain functions are vital functions such as breathing persist. heart beat See: Lovato v. District Court in and Dist., 419, 6, 1072, the Tenth Judicial 198 Colo. 426 n. 601 P.2d dead, hand, (1979). A 1076 n. 6 who is brain on the other is stimuli, non-responsive independently, to all unable to breathe 426, displays absolutely no reflexive movements. Id. at 601 P.2d at L.W., 53, Guardianship 1077. See also: Matter 167 Wis.2d 62-64 (1992), citing n. 482 N.W.2d 63 n. 1 the Guidelines for State Making Authorizing Withholding Life-Sustaining Court Decision Treatment, Appendix Medical National Center for State Courts B. 438 PA.Super. —22 he cannot eat. He receives he cannot move and speak;

cannot nutrition, gastrostomy hydration through and medication all he will hope There no tube into his stomach. inserted improve. or that his condition will recover Sherman, mother, Fiori’s after consult- Rosemarie that further family, with Fiori’s concluded ing physicians and that all artificial life sustain- treatment was not beneficial However, Nursing Mayo terminated.2 ing measures should be *19 without a court order. carry prior refused to out her wishes Therefore, judicial a autho- petition requesting Sherman filed procedures. hearing A sustaining life rization discontinue and, no of Fiori’s own although was held direct evidence objective court presented, applied was trial desires The Office of the granted petition. standard Sherman’s Pennsyl- the Commonwealth of Attorney General on behalf of appeal. vania filed instant many recognizes, As there will be occasions majority members, pa- with the family along a close patient’s when without court capable deciding, are most physician, tient’s intervention, dis- sustaining life treatment should be whether Al- in a vegetative for a state. persistent continued cases, judicial such though require I would not involvement matter, that, will frequent I there be recognize practical will called decide such upon occasions when the courts be Thus, action, in the family instant Sherman intimate matters. courts, the convalescent initiated contact with because her had her accept which cared for son refused facility case, in my judg- requests for her treatment. Such a son’s ment, brought a court. Other cases properly can be before required requested will or come judicial which intervention to mind. readily medi- right

Debate over to refuse life by cal treatment has been fueled advances medical technol- life practitioners prolong have enabled medical ogy which where, shortly have past, in the death would been forthcom- long A now be after ing. semblance of sustained by appointed legal guardian had been of her son in 1980 Sherman County Orphans' Court. order of the Bucks terminally ill “Hopelessly has ceased. existence conscious end, a swift now have met with past in the would who patients them, near the threshold can sustain that medical science find Longeway, In re Estate death, yet not across it.” but 292, 294 N.E.2d 33, 39, 139 Ill.Dec. 133 Ill.2d (1989). said in Rasmussen of Arizona Supreme As the Court (1987): 207, 741 P.2d 674 154 Ariz. Fleming, by Mitchell delineated and death were the realms of life long ago Not wondrous line is blurred line. Now this bright that until recent technology in medical advances —advances science-fiction by such only ideas conceivable years were Medical technol- and H.G. as Jules Verne Wells. visionaries suspended zone of twilight effectively created a ogy has form, life, in some while commences animation where death however, no of a life part want patients, Some continues. Instead, they prefer technology. only by sustained take its allows nature to medical treatment plan dignity. to die with permits them course their to refuse medical more individuals assert As medicine, treatment, disciplines do the frequently more *20 This inter- law, religion and collide. technology, philosophy, to which no many questions raises interplay disciplinary answers. has all the profession single person 211, P.2d at at 741 Fleming, supra Mitchell v. by Rasmussen acknowledged pos that individuals Numerous courts have treatment, right to refuse sess and have found hydration, artificial nutrition and including Constitution, States privacy the United right its basis the provisions, constitutional contained state rights invasions, bodily from unwanted right law to be free common See, v. Di e.g.: Cruzan statutory enactments. and various 2841, Health, 261, rector, 110 S.Ct. Dept. Missouri 497 U.S. of (1990) (federal constitution); by Rasmussen 111 224 L.Ed.2d (federal constitutions and state Fleming, supra v. Mitchell law); Hosp., Memorial 40 v. Manchester Foody and common (1984) Severns, (same); 425 127, In re 482 A.2d 713 Conn.Sup. L.H.R., (federal (Del.Ch.1980) constitution); re In 156 A.2d 634 In (1984) (same); re Estate 439, 716

253 Ga. 321 S.E.2d of (common statutory provisions); Longeway, supra law and Lawranee, (Ind.1991) (federal Matter of 579 N.E.2d 32 by DeGrella statutory provisions); state constitutions Elston, law); In (common Parrent v. 858 698 (Ky.1993) S.W.2d (state P.V.W., v. (La.1982) Brophy re statute); 424 1015 So.2d Inc., New 417, N.E.2d England Hosp., Sinai 398 Mass. 497 v. (1986) (federal Mack law); and common 626 constitution (1993) (common Mack, law); In re 188, A.2d 744 329 Md. 618 Crum, 596, 876 Guardianship of 61 Ohio Misc.2d 580 N.E.2d Prob.1991) (federal (Ohio constitution); Matter Guardian L.W., (federal 53, (1992); ship 60 167 Wis.2d 482 N.W.2d law). common “No is held right and state constitutions and law, sacred, carefully guarded by more or is more common than individual to the and control right every possession all of his free from restraint or interference person, own others, law.” unquestionable authority unless clear L.W., 68, supra Matter at at Guardianship of 482 N.W.2d Railway Botsford, v. 141 Union Co. 65, U.S. quoting Pacific (1891). Cf. In re 250, 1001, 251, 1000, 35 734 11 S.Ct. L.Ed. C.A., 594, 603-04, 797, 803, Ill.Dec. 603 Ill.App.3d 236 177 denied, 642, appeal 1171, (1992), 1177 148 Illl.2d 183 N.E.2d (1993). 20, Ill.Dec. 1264 610 N.E.2d agree A of courts also self majority has merely is not lost because an individual determination v. by Mitchell See, Rasmussen incompetent. e.g.: become' 686; Foody 219, Fleming, supra, 154 Ariz. at P.2d at 741 supra, Hosp., Manchester Memorial at Conn.Sup. Severns, L.H.R., re supra supra, In re 718; 159; A.2d at at P.V.W., 718; 1017; supra In re at 253 Ga. 321 S.E.2d at at Mack, In re 756; supra, Mack v. at A.2d 329 Md. Crum, supra, Guardianship of Ohio Misc.2d at L.W., supra, 881-882; Guardianship Matter N.E.2d at *21 72-74, “The and 167 Wis.2d at 482 N.W.2d at 67. existence viability long personal right hinge does not of a established exercise, its nor is one is upon extinguished it when prescient L.W., Guardianship Matter of adjudged incompetent.” supra at 74, at 67. 482 N.W.2d

635 life the use of regarding wishes patient’s Where discerned, should be honored. those wishes can be treatment have however, prepared individual will not an Frequently, that he the event regarding instructions explicit it is more Although Id. incompetent. See: or she becomes sus- under which life the circumstances difficult to determine has become where a measures should cease taining desires, it his or her having expressed without incompetent an intent express not be assumed that a failure should extraordinary all accept any manifests a decision 74-76, 482 N.W.2d at 68. treatment. Id. at prolonging life sustain appropriate it would be to discontinue Whether is incompetent patient of an ing treatment where the intent objective standards. judged by applying known should be not See, 154Ariz. by Fleming, supra, Rasmussen e.g.: Mitchell 222, 689; Foody 741 P.2d at v. Manchester Memorial at 721; In re Conn.Sup. at 482 A.2d at Hosp., supra, 763, 773-774, Misc.2d Guardianship Myers, Ohio (Oh.Com.Pl.1993); Guardianship N.E.2d 669-670 In re Crum, 882; Misc.2d at 580 N.E.2d at supra, Ohio L.W., 74-76, supra, 167 Wis.2d at Guardianship Matter state, at 68. “An is a ward of the incompetent N.W.2d court to parens patriae power requires [a] state’s [the] are Matter protected.” ensure that the ward’s best interests L.W., 482 N.W.2d at 68. Guardianship supra If self is to be determination] the exercise of the [to has been made expression maintained where no treatment, place as to it must take incompetent patient analysis implement within the context of an which seeks to in that best interests reference to person’s what criteria. Commission Re- objective societally shared See “In pp. assessing procedure 134-35. whether a port, interest, course of treatment would be best as the decision maker must take into account such factors or restoration of func- suffering, preservation relief of as well as the extent of life sus- tioning quality Report, p. tained.” Commission *22 636 at Conn.Sup. 40

Foody Hosp., supra, v. Manchester Memorial 139, A.2d at 721. 482

A to decide whether medical treatment court which asked the or family’s should consider whether should be discontinued “best interests” of recommendation would be the guardian’s patient. the standard, surrogate the decision-

Under the best interests would in the what medical treatment be maker assesses by objective as determined such patient’s best interest preservation or restoration suffering, as relief from criteria life. of extent of sustained functioning, quality ‘An accurate assessment will Report Commission at 135. present the of de- consideration of satisfaction encompass satisfactions, sires, for and the opportunities the future capacity or the for self possibility developing regaining of determination.’ 222, 154 Ariz. at Fleming, supra, Mitchell v. by

Rasmussen omitted). (footnote objec- applying 741 at 689 When P.2d any it is for the court to consider appropriate tive standard the while expressions competent, relevant made available, presently which are the benefits options thereof, improvement, the likelihood of non-benefits associated with either suffering amount of or discomfort treatment, course, degree dependence upon presence progressive intrusiveness of procedure, any, hospital if physical opinion, deterioration and Foody v. Manchester Memorial bio-ethics committee. See: 718-719; at A.2d at Hosp., Conn.Sup. 482 supra, Fleming, at supra, Mitchell v. Ariz. Rasmussen 689; supra, In 62 Ohio Misc.2d at Myers, P.2d at re L.W., 670; Guardianship supra, 610 N.E.2d at Matter of 84-86, at 482 N.W.2d at 72-73. Wis.2d Therefore, generally Life is worth the burden preserving. upon must rest who asks proof necessarily petitioner sustaining life extraordinary court to order discontinuation He or to show that required measures. she will life will not extraordinary continuation of measures cases, a court patient. serve the best interests of the such death and natural dignified to find that “[a] should be able maintaining physiological the interest of outweigh [will] Guardianship medically possible.” Matter long as L.W., someone to require at 68. “To 482 N.W.2d supra decades perhaps persistent vegetative state] remain in [a Indeed it can interest of that individual. cannot be the best *23 condition, in with no to an individual that argued keep be that interest, but is the best recovery, only against is not hope Misc.2d at Myers, inhumane.” In re 62 Ohio supra, treatment are the benefits of continued N.E.2d at 670. Where patient, there- outweighed by limited and its burdens on fore, in best interest to discontinue may it be treatment. patients

The basis for medical treatment of is primary (specifically, the prospect that each individual’s interests Thus, treatment well-being) promoted. interest in will be life, ordinarily patient through preserving aims to benefit a suffering, against disability, and relieving pain protecting If a returning maximally functioning. progno- effective correct, however, is con- permanent sis of unconsciousness benefits. tinued treatment cannot confer such Toms, 357 N.W.2d Conservatorship Matter of (Minn.1984). from the termination Although death result treatment, if the relatively quick; it will be certain and years, to for several death will still languish is allowed time. it is be imminent but will occur at an unknown Where no produce treatment will extraordinary certain that further may be vegetative patient, for a beneficial result discontinued. in between life

The decision such cases -willinvolve a choice Therefore, a court must exercise caution and and death. trial which has profound responsibility remain conscious of the court, me, in An it to must appellate been vested it. seems has profound responsibility also be which cognizant its been in the trial court and should not substitute vested It that a decision of judgment for that of a trial court. follows court should not disturbed absent an abuse a trial be discretion or an error of law. properly- Mrs. Sherman’s trial court granting petition, incap- Fiori is completely a “best interests” standard.

applied recognizing his environment. He participating able primitive ability the most to cognitive only has no abilities He has his condition respond persisted present stimuli. medical evi- years. for seventeen The improvement -without improve. that will his condition never dence uncontroverted employed be Although technology may perpetuate he continue to years, for several more will his existence already have family physicians deteriorate. As Fiori’s realized, sustaining use of treatment will not the continued life attempts has come to suspend beneficial to him. time be unnaturally allow to follow life and to his life its prolong his to rest. The time has come allow Fiori natural course. appro- I court Because hold the trial considered would determining petition Mrs. Sherman’s criteria whether priate I which granted, would affirm court’s order should hy- nutrition and withdrawal permitted the *24 by a already the represented dration. Because guardian ad litem have added and because could guardian court’s and sensitive consideration nothing the trial careful conten- reject Attorney I would the General’s petition, of the appointment guardian that we reverse for the tion should . ad litem.

ROWLEY, Judge, joins. President McEWEN, Judge, concurring. life!”, your highwayman demanded the money

“Your life.”, protect money, your “I but not your the horseman. can that the How anomalous the lawless decreed chancellor. both particular property. and the lawful share focus— divergent expressed views compelling presentation The fulfills colleagues so our intermedi- my admirably esteemed precisely and so defines the issues as to role appellate ate Thus, while, Supreme review our Court. readily enable case, in the to permit the of this I concur decision under facts Joseph Daniel life-sustaining the termination of I am expression in since joinder any Fiori, I refrain from society does uncertainty: what values aby nagging beset require careful legal system permits when it its reflect affecting property the judicial scrutiny of decisions scrutiny of a deci- judicial similar incompetent, precludes but incompetent? the life of the sion to terminate OLSZEWSKI, Judge, concurring. re- in all majority’s thoughtful opinion

I the agree with dissenting concurring of the aspect I feel one spects. that response. brief opinion merits a privacy and self- uses the individual’s majority

The con- analysis, in its starting point determination as us, legal in narrow fact situation before cludes that termi- in difficult decision of when to system will not aid arrives at a different conclusion support. life dissent nate duty analysis with the Commonwealth’s by beginning its protect obligation its This parens patriae of citizens. that leads dissent to conclude citizens welfare disabled life in to terminate every be involved decision courts must support. parens patriae

I Commonwealth’s would observe that the than courts through bodies other power can be exercised case, the Commonwealth’s legal system. present citizens and protecting preserving its disabled interests two majority’s amply discharged by requirement are To be every termination decision. li- participate doctors Commonwealth, doctors practice medicine this censed to train- training in medical ethics. This undergo extensive must anything than we members ing specialized is far more *25 only bar in our formal education. When bench and receive surrogate are the decision parties to termination decision dis- parens patriae maker and the Commonwealth as duly perfectly capable licensed doctors are subject, abled two majority Commonwealth’s The interests. representing situation, system in narrow the court observes that this rightly nothing except delay, expense to contribute likely intrusion.

Judge Popovich begins by noting his dissent that courts are a reservoir of wisdom on life and death decisions. The same is true of the medical which in the profession, specializes subject instant matter. We members of the bench and bar ought only in mind that we are not the licensed keep in in professionals capable this Commonwealth trained difficult ethical decisions. making POPOVICH, Judge, concurring dissenting. I reached agree ultimately by Majority, with the result I disagree pursued but with the course to achieve that end. Specifically, Majority offers that the courts should refrain from a forum for the resolution of “life and death” being decisions, it that a “close and two believing family member in the best qualified physicians” position are to make such of a patient assessment the case comatose who never articulated his wishes should he find himself an irreversible vegetative condition. state, citizenry, as the of its is not to be parens patriae intrusive, participant

dismissed as an uninvited when the life instances, In just of one of its own is at risk. such the courts (as an of state have been a reservoir of government) extension when a life in being hangs wisdom and counseled reflection inmates, balance, row” of men- e.g., ligation “death tubal for a who tally parents retarded and blood transfusion child oppose procedure religious such a reasons. No less should sagacity such be dismissed-as an unwarranted invasion into a facing “life and death” situation such as the one the Fiori family. it that a

The amount of time and effort would take to insure life-support, espoused comatose on who never his or condition, her in advance of such a should have such position extraordinary by securing medical services terminated the- of a court is no more burdensome than imprimatur obtaining among family physicians consensus and two regarding vegetative patient. Expe- irreversible state of the comatose hearings court-supervised dited are available for such deci- sion-making concerning sanctity of human life and would *26 Rather, such a privacy. not act into one’s be an invasive are with the parties truly acting would assure that all process by any mind and not motivated best interests of the scrutiny veiled light by hidden from the ulterior motive patient’s well-being. concerns for the result, I of involving am in favor Majority, As a unlike the never a who has patient, the courts those cases where treat- life-sustaining his on expressed or her concerns ment, no in a state and reasonable vegetative persistent is foreseen medical awakening from coma likelihood following In a I offer the position, such personnel. support of observations, precipitating facts preceded an account this ease. Joseph Navy, in the Daniel

In while enlisted June from he was thrown a injuries Fiori head when sustained was on base. He comatose motorcycle operated military he consciousness. But was regained until 1972 after which he severely confined to wheelchair had partially paralyzed, only he able to articulate the cognitive limited abilities: was “eye” responses. “itch” in all words admitted to a leg In fractured his was Daniel During stay, his he suffered hospital. veterans administration left comatose so that injury totally a second head which him (and are) admin- medications, were still all fluids and nutrition into surgically inserted his through gastrostomy istered tube stomach. Sherman) (Rosemarie appoint- was Daniel’s mother “to for him decisions guardian person

ed of his make those There- prosecution contemplated lawsuit.” including after, govern- was reached wherein the federal a settlement alia, inter “full- provided, ment a trust fund which established up whereby nursing time ... care.” The trust was set lived, to mother Daniel the more would be available his longer $400,000.00 annuity up upon of an his recipient demise.1 provided tied to the trust document for increments in benefits life; longevity of Daniel’s to-wit: and Convalescent

Presently, Mayo Nursing Daniel lives which, provided has Philadelphia, parties agree, all Center Likewise, has been extraordi- “excellent” care. Ms. Sherman *27 throughout period to Daniel’s needs this narily attentive —1971 present. to the him injury totally incapaci-

After Daniel’s second head left world, oblivious to the Ms. reached a tated and Sherman decision to cease artificial after consultation with life-support all of whom concurred in the family priest, her members and However, life-support. Mayo nursing decision to remove refused to accede to Ms. Convalescent Center Sherman’s sanctioning a court order the removal of the wishes absent gastrostomy Accordingly, tube. Ms. Sherman filed “Petition Life-Sustaining For Authorization To Discontinue Proce- dures,” feeding of the abdominal tube which included cessation life-sustaining proce- of all medications and and discontinuance dures for Daniel.

Prior to for review of Ms. Sherman’s scheduling hearing of the of Penn- petition, Attorney General Commonwealth after served with the secured an order sylvania, being petition, (Dr. David appointing independent expert of court Cook, neurology, University clinical of Penn- professor G. Medicine) to evaluate Daniel and submit a sylvania School of report supple- to the court. This assessment was made and Dr. performed by mented examine William neurological of 1992. Wiggins April Stover $25,000.00 annuity anniversary of the on the second $50,000.00 anniversary annuity of the on the fifth $100,000:00 annuity anniversary of the on the tenth $150,000.00 anniversary annuity on the fifteenth of the $200,000.00 anniversary annuity on the twentieth of the $250,000.00 twenty-fifth anniversary annuity on the of the $300,000.00 anniversary annuity on the thirtieth of the $350,000.00 thirty-fifth anniversary annuity on the of the $400,000.00 anniversary annuity on the fortieth annuity being The incremental nature of the to Ms. Sherman linked to longevity appear specious of Daniel’s existence would to render Attorney argument barring General's that a conflict of interest arises being guardian. Appellant’s Ms. Sherman from See Brief at 11. Her geared prolonging curtailing interest would be toward his life and not it. 1, 1992, was conducted before hearing September On two witnesses only Sokolove. Honorable Leonard and Ms. Sherman. testify Wiggins were Dr. examined neurologist,

Dr. a board certified Wiggins, 3, 1992, him be and found April on 42-year-old Daniel then stimuli, movements for withdrawal save nonresponsive as a the witness described This was pinched. when function. any not brain require reflex which did “primitive” tracheostomy and a by a breathing being was aided Daniel’s inserted surgically that had been (gastrostomy) tube feeding of medication receipt permit into his stomach to nutrition. tests, both

Further, EEG and MRI Wiggins Dr. conducted no normal brain areas of “[t]here were of which showed both abnormalities of “profound were activity” and there abnormalities, with those hemispheres.”2 cerebral Someone *28 witness, eat, or interact speak would not be able noted the Also, observed the in our environment. way in an appropriate ability of the witness, person deprives such a condition think, pain or experience pleasure. records and his examining patient, the medical

After was in caretakers, opinion that Daniel Dr. was Wiggins state”,3 he could do only thing and the “persistent vegetative ‘‘periphery” enables one by Wiggins, Dr. brain 2. As observed think, by breathing are controlled while one's and heartbeat to talk and activity "deep in ... brain stem.” persistent vegetative as follows: Wiggins state 3. Dr. defined you any way. interact with it's who breathes but wouldn’t "... one is lost because capacity and swallow in a normal manner The to chew hearing effectively. voluntary, looking or are as with those functions effectively only persistent vegetative can do thing state] in a [one breathe, beat.” N.T. 17 and their heart Director, Supreme by As United States Court noted Cruzan 2841, Health, Dept. U.S. 267 n. 110 S.Ct. Missouri (1990): n. 111 L.Ed.2d Plum, "persistent vegetative state” Dr. Fred the creator term "vegetative expert subject, on the has described and a renowned following state” in the terms: “ functioning entirely body 'Vegetative state which is describes temperature. It It main- controls. maintains terms its internal digestive pulmonary It maintains beat and ventilation. tains heart effectively was breathe and his heart would continue to beat. Dr. Wiggins believed that Daniel would not improve. This opinion (Dr. Cook) was expressed second neurologist who examined Daniel and prepared report for the court which found him to inbe the same condition. believed,

Both experts within a reasonable degree of medi- cal certainty, that Daniel’s condition would not improve as evidenced by his status quo the last years. seventeen fact, Notwithstanding such a in light of the “superb” nursing (and receive) care Daniel had received was continuing over years, his life-span could extend for another twenty ten to years.

However, in response query to a by the court in regard to the quality-of-life aspect, Wiggins Dr. opined that Daniel does not have sufficient cognitive power to know of his own exis- tence, nor does he experience pleasure pain. stand,

When Ms. Sherman took the gave she an account of a who, son accident, after his 1971 motorcycle could communi cate “facially” with her use the words “itch” and “eye” to express his- wants and needs.4 After his second injury in whereby comatose, he became he was not able any exhibit awareness of his situation. His condition has not changed. Although he can “express” he pain, makes no sound, and he cannot hear or see.

Ms. Sherman admitted that she never spoke to her son about his wishes should the situation in which he now finds Nevertheless, himself occur. in the absence of any quality to life, his Ms. Sherman believed her son should be afforded the *29 opportunity, after seeing limp his and body lifeless over the years, to “rest in peace and be with God.” activity. activity It maintains reflex of muscles and nerves for low responses. level conditioned But there is no behavioral evidence of either self-awareness or surroundings awareness of the in a learned ” Jobes, 394, 403, (1987).

manner.’ In re 108 NJ. 529 A.2d Despite speech 4. classes in speak. Daniel did not learn to He did learn "behavior” and was described his mother as “more sad” as prone time agitation went on and to exhibit and tears over his frustra- tion. a life”, player, a he was football e.g., “loved Because her son band, him to see school high in the drummer surfer “He would his wishes: not in accordance with “suffering” was upon conclusion based this way.” this She not want live than it, my I son better fact, “Because knew phrased as she 48. N.T. living.” liked knew him” and “he anyone opinion issued an testimony, the court After the close request her Sherman petitioner/Ms. granting order The Commonwealth from her son. all life-support withdraw exceptions which filed Pennsylvania’s Attorney General instant of the perfection were denied and followed grounds on that: issuance of the order challenging the appeal guard- by failing appoint 1. erred Orphans’ The Court interest a life-and- patient’s represent ian ad litem to proceeding. death by authorizing erred Orphans’ Court evidence his convincing clear and requiring

death without life-sustaining intent about medical treatment. I issue will posed, of the first addressing

Before the merits that of the Sherman respond argument petitioner/Ms. to the guardian ad litem Attorney failure to raise the General’s trial results its waiver. issue at to raise cavil that the failure jurisdiction, beyond In this it is timely appellate them waived issues in a fashion renders Co., 457 Trust Pa. Lehigh Valley Dilliplaine See purposes. 302(a). bar, At (1974); Pa.R.App.P. 322 A.2d was conduct- pre-trial hearing that Attorney General states time, he alleged, “requested At it is of 1992. ed June expert independent court to ... appoint Brief at 4. Appellant’s ad guardian litem.” However, Attorney General that the the record discloses ap- for the writing only his “recommendations” reduced Daniel and a continu- neurologist of a to examine pointment testing. of the pre-trial hearing pending completion of the ance by the court. requests granted 9. Both were See Record No. issues until the guardian and notice appears No mention *30 646

filing exceptions order granting petition- court’s Sherman her request for relief. er/Ms. Id.

Thus, but for the Attorney General’s exceptions and refer- ence in appellate his brief to the proffering of the issues reviewed, sought I have no record evidence to refute the court’s finding the issues were waived for failure to raise either one at pre-trial hearing. Contrast Thatcher’s Drugs Inc., Supermarkets, Consolidated 524, 391 Pa.Super. (1990), 571 A.2d 490 rev’d on other grounds, 469, 535 Pa. 636 (1994). A.2d fact, the court denied specifically the Attorney exception General’s guardian claim. See added). Lower Opinion Court at 2 (Emphasis Because the record is not supportive of the Attorney Gener- (and position al’s reference to an admission a party- opponent in their brief to subject the same matter is not a evidence5), substitute for record court not ignore noncompliance with established case law preservation as to an issue for review.6 See Dilliplaine, supra; Thatcher’s Drugs, Rini, supra; Commonwealth v. 285 Pa.Super. (1981). A.2d 1385 Arguments

5. litigants made in the briefs are not sufficient to fill the void created preservation deficient record on a question. McCor- Allegheny mick v. Hosp., General Pa.Super. 527 A.2d 1028 (1987). 6. Just Attorney as the General formalized his “recommendations” to expert appointed have an and a hearing, continuance of the the same procedure could have followed request appoint- to document his for the guardian ment of a ad litem. The Attorney court's refutation of the allegations preservation General’s (appearing they do in his brief) appellate being not substantiated in the record renders them Rini, purposes. waived for review See Pa.Super. Commonwealth v. (1981). 427 A.2d 1385 I would pre-trial observe that at the hearing, Attorney General could proceedings have had the stenographically preserved they if were already not being recorded. His failure to act to either have the hearing being already transcribed or if transcription recorded have the record, part made Pa.R.App.P. exposes 1911 and see. him rigors to the of the waiver doctrine. It is not the function of this court to scour the record to make sure that all relevant documents are included within the official appellate record forwarded for review. The

responsibility upon appellant. to so act is See Rule the first preserve Attorney General’s failure For the *31 below, to review, I, find it be the court for as did issue waived.7 a “clear and adopt this to issue asks Court remaining in in known the vernacular proof of cases standard

convincing” is cases, assigned of which to die” the absence “right as a remedial a remand necessitating as error presently seeking with- petition anew Ms. Sherman’s judge measure to Daniel. treatment for life-support drawal of of what standard embarking analysis an upon Before life- a efforts to withhold guardian’s is be to proof applied to in a persistent ward incompetent treatment to not case in state,81 to that this is a point wish out vegetative perish. is let the Court asked to someone which dead, terminally is ill. nor he “medically” Daniel is neither pu,t permit guardian to a to in Rather, this Court is asked by Daniel to die starvation allowing motion a series events deprivation dehydration. This benevolent type otherwise, if, my arguendo, I review of the entire Even were to hold 7. to applicable subject would lead me find law hand record and failing part below in of discretion on the court no abuse guardian appoint a ad litem. by represented adequately I that Daniel's interests were believe Estate, i.e., 431 Pa. person, See LaRocca guardian of his Ms. Sherman. 105, 337, 542, 549-550, (1968); Curry Appeal, 390 Pa. 246 A.2d (Purdon's (1957); Pa.Leg. § 3504 20 Pa.C.S.A. 134 A.2d Ser., 2, 1992). I Ms. Sherman for Thus see no need remove No. guardian a appoint or ad litem. another Further, subject provider can be physician no or health care because any related to liability participating in conduct or civil for to criminal life-sustaining 5407(a) Chapter patient, see Section for a treatment (Purdon's Pa.Leg.Ser., Act No. Directive for Health Care of the Advance 2, (“the Act”), 1992) convincingly guardian that argue a nor could one exposed or civil acting a to criminal pursuant to court order would prosecution Act from liability similar conduct insulated under the for participation a purpose to of district liability, I see no be served attorney in cases like the one at bar. limiting my analysis to situation in which that I am a I would remark having expressed person incompetent without competent has become continuing life-sustaining when in view on he/she his/her persistent vegetative state. any way formulating a review scenario I in no standard of am presently before Court. the one this other than (as puts nutrition and hydration perspective debate results) multiple opposite evidenced briefs espousing death, not between life and but a discussion focusing upon thereof) (or quality of the absence death. sure, amici curiae litigants To be all have coalesced Daniel, objective achieve a common what is best for doing Thus, similarly and all situated.9 others this Court’s role is predicated legal limited one in our decision upon that must be principles analysis and reasoned to remain true to our goal ameliorating limited to facts with which disputes we are presented. note supra. See This case is of first impression Pennsylvania one appellate no has ruled on posed. court Nonethe- question less, the courts of some of our states sister and our own *32 Courts of Pleas have Common been confronted with similar unanimity issues.10 has permit Near been attained to individ- resolving scrutiny, 9. In acknowledge the issue under I wish to Pennsylvania Society benefit of the of amici curiae: briefs The Medical urging Pennsylvania seeking affirmance Catholic Conference reversal of the court’s order. My following examination cases has uncovered decisions here; dealing confronting with an similar to the issue one us to-wit: 207, (1987); Fleming, Rasmussen v. 154 Ariz. 674 v. 741 P.2d Barber 1006, Super.Ct. Calif., Cal.App.3d Cal.Rptr. State 147 484 195 of of ; (1983) Super.Ct. Dority County San Cal.App.3d v. Bemadino 145 of 273, (1983); Cal.Rptr. Bartling 193 288 Glendale v. Adventist Medical Center, 961, (1986); Cal.App.3d Cal.Rptr. 184 360 229 Bouvia Su v. 1127, (1986); per.Ct. Angeles, Cal.App.3d Cal.Rptr. 179 225 Los 297 of III, 185, (1988); Cal.App.3d Cal.Rptr. In re Drabick 200 245 840 Dist., 419, Trujillo v. & Tenth 198 Dist.Ct. in Judicial Colo. P.2d 601 for 127, (1979); Foody Hosp., 1072 v. Conn.Sup. Manchester Memorial 40 (1984); Center, 482 Wilmington A.2d 713 (Del.Ch.1980); Severns v. Medical 425 A.2d Perlmutter, 156 1978); v. (Fla.Dist.Ct.App. 362 So.2d 160 Satz Guardianship Barry, (Fla.Dist.Ct.App. In re 445 365 So.2d of 1984); Bludworth, Kennedy Hosp. John F. Memorial v. 452 So.2d 921 D’Allessandro, (Fla.1984); (Fla.Dist.Ct.App. Corbett v. 487 So.2d 368 1986); County, Health Wons v. Public Trust Dade 500 So.2d 679 of 1987); L.H.R., 439, (Fla.Dist.Ct.App. In re Ga.. 253 321 S.E.2d 716 ; Olds, (1984) PVW, (Iowa Morgan App.1987); v. 417 N.W.2d 232 In re (La.1982); Mack, 188, 424 So.2d 1015 Mack v. 329 Md. 618 A.2d 744 Gardner, (1993); (Me.1987); Joseph In re Superintendent 534 A.2d 947 Saikewicz, 728, Belchertown School v. State 373 Mass. 370 N.E.2d of 417 Dinnerstein, (1977); 466, Mass.App.Ct. In re 6 380 N.E.2d 134 (1978); 629, (1980); Spring, In re 380 Mass. Custody 405 N.E.2d 115 of Minor, 697, Hier, (1982); 385 Mass. 434 N.E.2d 601 In the Matter of

649 accomplish or their wards seeking uals death themselves Harmon, v. by Cruzan that end. See Cruzan 408, 760 S.W.2d 200, (1984); England Brophy v. New Mass.App.Ct. 464 N.E.2d 959 18 417, (1986); In Hosp., 497 626 the Matter 398 Mass. N.E.2d Sinai of 10, Quinlan, Torres, (Minn.1986); 70 N.J. 355 332 In re 357 N.W.2d 321, (1976); Conroy, 486 A.2d 1209 98 N.J. A.2d 647 In Matter of 103, (1985); Luchs, (1985); In N.J.Super. 501 A.2d 1040 206 v. Iafelice Clark, 548, (Ch.Div.1986); In N.J.Super. A.2d 136 210 510 Matter of (Ch.Div.1986); 475, Requena, N.J.Super. 517 A.2d 886 the Matter 213 of 335, (1987); Farrell, In the 108 529 A.2d 404 In Matter Peter, Matter N.J. of 394, Jobes, (1987); In the Matter 108 529 A.2d 434 N.J. of of Eichner, 365, (1987); 102 N.J. 529 419 In the Matter 108 A.2d of 184, (N.Y.Sup.Ct.1979); In the Matter 580 Misc.2d 423 N.Y.S.2d of 477, Lydia Cinque, 455 N.Y.S.2d 706 Hospital Hall 116 Misc.2d E. v. C., 672, (N.Y.Sup.Ct.1982); 477 N.Y.S.2d 281 A.B. v. 124 Misc.2d Paddock, Hosp. (N.Y.Sup.Ct.1984); Irving v. 127 Crouse Memorial 101, (N.Y.Sup.Ct.1985); 443 In the Matter Misc.2d 485 N.Y.S.2d of Saunders, 45, (N.Y.Sup.Ct.1985); In 129 492 N.Y.S.2d 510 Misc.2d Delio, 206, (N.Y.Sup.Ct.1986); Matter 134 Misc.2d 510 N.Y.S.2d 415 of "U", 351, (N.Y.App.Div. Harvey 116 N.Y.S.2d 920 In re A.D.2d O’Brien, 501 1076, 1986); 135 517 N.Y.S.2d 346 In Matter Misc.2d of 395, Forman, Vogel (N.Y.Sup.Ct.1986); 512 N.Y.S.2d v. 134 Misc.2d Fink, (N.Y.Sup.Ct.1986); v. 622 the Matter Workman’s Circle Home In of 270, (N.Y.Sup.Ct.1987); In 135 514 893 the Matter Misc.2d N.Y.S.2d 931, Weinstein, (N.Y.Sup.Ct.1987); 136 Misc.2d 519 N.Y.S.2d 511 Center, 1, N.E.2d 809 Leach Akron Medical 68 Ohio Misc. 426 General Milton, 20, (1987); (1980); re re 29 Ohio St.3d 505 N.E.2d In In Dorone, 59, (1985); Ragona v. Pa.Super. 502 A.2d 1271 Estate Preate, (Lackawanna Cty.1990); & In the Matter 6 D. C. 4th 202 114, (1983); Colyer, Dinino v. State 660 P.2d 99 Wash.2d (1984); In the Matter Washington, 102 Wash.2d 684 P.2d 1297 Hamlin, (1984); 689 P.2d 1372 the Matter 102 Wash.2d (1984); Guardianship Ingram, In re 102 Wash.2d 689 P.2d Grant, (1987). 747 P.2d 109 Wash.2d us, confronting survey having issue For a of states addressed the L., Beebe, Right Really compiled to Die: Who same Kristen *33 Decision, (1992). 649 Makes the 96 Dick.L.Rev. Kentucky had recently, Supreme Court of occasion Most Elston, 858 S.W.2d 698 "right to issue in DeGrella v. address the (Ky.1993) die” distinguishable from the one sub which I find to be case judice incompetent expressed” “had her wishes that the in DeGrella Also, vegetative case persistent if in state. was not be sustained Lastly, premised upon right law of self-determination. the common adopted position not Kentucky court that a court need be consulted life-sustaining where withdrawing in sary treatment facts neces- advance carefully so held the matter do were documented. court legal question was a as to whether termination life- not factual support was warranted. Consequently, do find the course this I not that DeGrella dictates pursue, persuasive I to cause me to discount Court should nor do find it (Purdon’s Pa.Leg. totally Care the Advance Directive For Health Act Serv., 2, 1992) assisting deciding direction to take. No. me in what contrary. Majority's Opinion See at 20-21 to 650 Director, (Mo.1988), aff'd sub nom. Cruzan v.

413 Missouri Health, Dept. 261, 2841, 497 U.S. 110 111 S.Ct. L.Ed.2d 224 (1990).

Absent the of a subject, existence statute on the the various legal precepts upon relied to authorize the withdrawal of sustenance from a person persistent vegetative state have been reduced to a “best interest” analysis, “substituted judg- ment” criterion or a “clear and convincing” evidence standard of proof which draw their strengths from the federal or state See, constitutional e.g., Rasmussen v. rights privacy. Fleming, 207, 674, (1987); 154 Ariz. 741 P.2d Bouvia v. 682 Ct., Superior 1127, 297, 179 Cal.App.3d Cal.Rptr. 225 301 Severns, In (1986); re 156, In re (Del.Ch.1980); 425 A.2d 158 A.C., 1235, In re Guardianship (D.C.1990); 573 A.2d 1244-47 Browning, 543 So.2d 258, 267 (Fla.Dist.Ct.App.1989), aff'd (Fla.1990); Brophy v. New England 568 So.2d 4 Hosp., Sinai Mack, 417, 626, 398 Mack v. (1986); Mass. 497 N.E.2d 633 329 Quinlan, 188, 744, In re (1993); Md. 618 A.2d 755 10, 70 N.J. 647, (1976), 355 A.2d Garger v. New 663 cert. denied sub nom. Jersey, 429 922, 319, (1976); U.S. 97 S.Ct. 50 L.Ed.2d 289 Center, Leach v. Akron Gen. Medical 1, 68 Ohio Misc. 22 49, 809, (Com.Pl.1980); O.O.3d In re Coyler, 426 N.E.2d 814 (1982). 114, 738, 99 Wash.2d 660 P.2d 742 Equally applicable right to the of an individual to forego life-sustaining is the common right law freedom from unwanted interference with bodily integrity (“self-determination”). Rosebush, In re 195 Mich.App. (1989 The Right to Die 49 (1992); Meisel, 491 N.W.2d Sloan, J., THE DIE: Supp.); RIGHT TO Irving Legal Quinlan Ethical Problems (1988); Note, In re Revisited: The Judicial Role in Protecting Privacy Right Dying (1988). Incompetents, Hast.Const.L.Q. In re Conroy, 321, 346, 98 N.J. 486 A.2d 1221-22 (1985), the court observed: sacred,

“No right held more or is carefully guarded more law, the common than the every individual to the possession and control of his own person, free from all *34 others, by unless clear restraint or interference of ..., to one’s authority right of law ‘The unquestionable to person right complete immunity: be said to be a of ” be let alone.’ is a jurisdiction, physician/patient relation this because one, in the renders services physician consensual where consent, under of there is an actionable tort absence informed 144, 223 battery.11 423 Pa. theory Gray Grunnagle, the of Doe, 371, 382, (1966); A.2d 663 In re Jane 45 D. & C.3d (Phila.Cty.1987). WL 226878 the of regard “right noted one commentator with to by

As self-determination”: right only of determination can be exercised

Since the self condition, a competent patient her person evaluate right forfeits her of self determination lacking capacity this maker, in surrogate standing place the unless the decision preference. This patient’s asserts the incompetent, decision-making this doctrine surrogate is embodied will on the substitute judgment. rely substitute Courts surrogate the decision-maker only doctrine when judgment person’s preferences with incompetent demonstrates the the a treat- certainty. expresses reasonable When court prior competence, loss of the preference ment her capacity to surrogate merely supplying views Thus, a dying enforce choice. incompetent’s rights right outweighs self determination provider other care to base patient’s family, physician, or their individual interests treatment determination on incompetent’s right The irreversible imperatives. ethical outweighs determination also the state’s interest self conjunction with law precept, 11. This when read one’s common signals with right statutory one receives of self-determination (see infra) passage during of the Act the 1992 session of Pennsylvania ingredients Assembly, General constitutes the out life-sustaining choose discontinue which I conclude through incapacitated person may be exercised his/her accomplished guardian. auspices of court All is to be under the See, e.g., Guardianship case-by-case Matter Ham under a basis. lin, (1984). 689 P.2d See discussion Wash.2d infra. *35 652 life, suicide,

preserving preventing protecting party- third dependents dying patient, of the the ethical preserving integrity profession. of the medical

The crucial trigger judgment exercise of substitute is a determination of what the incompetent’s choice would be if In competent. relatively were the few cases shelThe] clear, patient’s preference where the is substitute judgment is the a proper surrogation method. When court cannot determine a patient’s preference, application strict the of substitute In judgment impossible. doctrine becomes such case, a a allowing surrogate judgment substitute her[/his] for surrogate’s that of the would result the supplying incompetent’s the content of the choice rather merely than implementing clearly choice. This violates underlying the use of principles judgment substitute Thus, effectuate a of self determination. normally rely courts do not on a surrogate supply a treatment decision a patient previously who has not issue.[12] expressed preference a clear on the Note, Quinlan In re Revisited: The Role in Judicial Protect- ing Privacy Right Dying Hast. Incompetents, 15 Const. (1988) (Footnotes omitted; L.Q. 484-^486 emphasis add- ed). Commonwealth, this a case which touches upon the consideration, presented

issue for our the court applied “clear convincing grant evidence” standard to a guard- of a ian/spouse 64-year-old incompetent, persis- who was vegetative tent state with no hope recovery, declaratory judgment seeking authorization for the removal of a nasogas- Interestingly, Majority upon judgment” relies a “substituted which, sense, approach, purest upon patient’s expression in its rests concerning deciding view issues in whether to cease However, providing medical care. at bar this is undermined the fact that nowhere in the record is there evidence that Fiori vocalized his position life-sustaining anyone on the use of treatment should he or else Thus, persistent vegetative appear be in a state. it would that the Majority advocating "hybrid” judgment the use of a substituted approach. Preate, Pa.D. & C.4th feeding Ragona See trie tube. 1990). (Lackawanna Cty., matter, governing

Noting legislation absence subject; law on the analysis on an case court embarked to-wit: jurisdictions other

There is a from plethora precedent in the and these courts concerning specific issue case required before degree specificity in the have varied the patient. wishes of being guided by prior expressed O’Connor, court, in In re 72 N.Y.2d highest New York’s (Ct.App.1988, amended 531 N.E.2d N.Y.S.2d *36 1989), (e.g., high degree specificity required relatively to the than immediate reactions “expressions were more hearing or of another’s unsettling seeing experience at 72 N.Y.2d 532 unnecessarily prolonged [534 death.” 614). 893], convincing N.Y.S.2d at 531 N.E.2d at “Clear needed, firm, and casual of a settled decision was evidence” remarks, Fur- if not sufficient. repeatedly, even made were thermore, to be relevant to the directly the statements had In the treatment. proposed current condition and patient’s contrast, court, in re Jersey’s Conroy, In highest New (1985), less required specificity N.J. 486 A.2d 1209 take form patient’s (e.g., might the wishes “It the regarding the voiced medical treat- patient regarding of reactions that 1230). Indeed, to others.” 486 A.2d at ment administered directly the not be where wishes could established, only court that there be “some required wishes, including patient’s evidence” of the trustworthy whole, that, vague, taken would be too “[e]videnee casual, provide direct remote” evidence wishes. Supreme recent of the Court holding

Of course the U.S. Director, Health, Department Missouri Cruzan [v. (1990) 2841, upheld U.S. 110 S.Ct. L.Ed.2d ] standard convincing Missouri’s use of the clear and evidence expressed wishes. In that patient’s previously to establish a case, order parents sought directing a court Nancy Cruzan’s feeding of their artificial daughter’s the withdrawal a persis- had into digressed after she hydration equipment life- law that such provided state. Missouri vegetative tent if the only peti- be discontinued measures could sustaining wishes as to incompetent’s express tioner demonstrated convincing “clear and by of such treatment the withdrawal stake, at After the state interests analyzing evidence.” no held that because there was Court of Missouri “Supreme desire to have life- Nancy’s evidence of convincing clear and circumstances, under such treatment withdrawn a request.” to effectuate such authority her lacked parents Cruzan, 265, 110 at 2845. 497 U.S. at S.Ct. supra, Cruzan, petitioner only testimony produced

In made to a incompetent’s general statements consisted live should she face that she would not want to housemate Id., In at 2855. 110 S.Ct. “vegetable.” life as furnished testimony of relevant critiquing paucity distinctly stated Supreme the U.S. Court petitioner, Cruzan not deal in terms with with- observations did “[t]he and nutrition.” hydration treatment or of drawal of medical n Id. short, that a state is court concluded the Cruzan free which proceedings in these adopt proof a standard incompetent’s convincing clear and evidence requires wishes, *37 liberty although equally a state is express stringent less standards. formulate added). for (Emphasis Poised 6 Pa.D. & C.4th at 206-208 that Ruth by Ragona found the court was consideration and state, irreversible, vegetative and that she persistent was in an by means her disdain for medical intervention expressed had feeding artificial tubes. of so, recounted, detail, in the medical doing

In the court by and her examination four neurolo- history in persistent vegeta- whom that she was a gists, agreed all of state, no her condition was irreversible and there was tive improvement. of possibility

Next, statements patient’s the court heard evidence of a which it found was “clear six-year span and conduct over life- intent to refuse expressed of an convincing” evidence legislation and, directly applicable sustaining treatment absent any public of contrary, transgression was no to the there of the Commonwealth. policy on proceed slowly, for the Court to advantageous

It basis, the state awaiting action a case while case Forward, Moore, Step One Steps “Two See legislature. Jersey’s “Right-to-Die” Latest Analysis An New Back”: (1988). Decisions, Since Rutgers L.J. 993-997 decision, however, fit Assembly has seen our General Ragona I find instructive establish legislation which promulgate issue at hand.13 Other states resolving ing standards statutory relevant the resolution found state law have Director, Dept. In Missouri issues. Cruzan v. these 2841, 2849-51, 111 Health, 261, 275-277, 110 S.Ct. 497 U.S. (1990), that: reported it was L.Ed.2d Drabick, 185, 245 Conservatorship Cal.App.3d denied, 488 U.S. 958 S.Ct. Cal.Rptr. [109 cert. (1988), Appeals autho L.Ed.2d California Court 387] 44- feeding from a of a tube nasogastric rized the removal vegetative state as persistent man who was year-old to refuse Noting right auto accident. that result common law and grounded was in both the that a state privacy, the court held constitutional to or authorized the conservator probate statute treatment when such life-sustaining der the withdrawal of on advice and good faith based medical decision was made acknowledging interests. While the conservatee’s best to choose’ incom ‘right “to claim that survives patient’s] [a best,” court reasoned that legal is a fiction at petence perspective my objective clarify place and the 13. To matters and into follow, deciding my which I looked in what course resources to (Purden’s upon the For Health Care Act reliance Advance Directive 2, 1992) ("Act”) judicial Pa.Leg.Serv., No. is not with blinders to "competent” present legislation applying in the it to individuals. caveat Nonetheless, guidelines” for the I find that the Act affords "functional right of via of one’s common law self-determination exercise his/her herein, which find instructive. guardian under the standards outlined I Decedents, Estates and Fiducia- same I believe holds true with the *38 Enterprises-Connecticut, Beverly Code infra. Cf. McConnell v. ries cited 596, Inc., (1989). 209 553 A.2d 603 Conn. 656 respect society accords to persons as individuals is not

lost upon incompetence and is best preserved by allowing others “to amake decision that reflects patient’s] [a inter ests more than closely purely would technological decision Id., to do possible.” whatever is 200 at Cal.App.3d 245 Cal.Rptr., at 854-855. See also In re Conservatorship of Torres, (Minn.1984) (Minnesota 357 332 N.W.2d court had statutory authority constitutional and authorize conser vator to order the removal incompetent of an individual’s interests). respirator since best In In re Longeway, Estate 133 Ill.2d 33 Ill.Dec. [139 780], .(1989), 549 N.E.2d 292 Supreme Court of Illinois considered whether a 76-year-old rendered woman incom petent from a series of right strokes had a to the discontinu ance of artificial nutrition hydration. Noting uncertain, boundaries of a right privacy federal were court found a refuse treatment the doctrine of Id., 37-38], informed consent. at 43-45 Ill.Dec. at 549 [139 N.E.2d, at 296-297. The court further held that the State impliedly Probate Act authorized a guardian to exercise a ward’s right to refuse artificial in the event that sustenance Id., the ward ill terminally was and irreversibly comatose. 39], N.E.2d, 45-47 Ill.Dec. at [139 Declining adopt a best interests deciding standard for when it would be appropriate to exercise a ward’s it right because “lets life,” another make a of a patient’s quality determination for the court opted judgment instead a substituted standard. Id., 40], at 49 Ill.Dec. at [139 549 N.E.2d at 299. Finding O’Connor, the “expressed intent” standard utilized in supra, too rigid, the court noted that other clear and convincing evidence of the patient’s intent could be considered. 133 Ill.2d, 41], N.E.2d, at 50-51 Ill.Dec. at [139 at 300. The adopted court also opinion “consensus treats [that] artificial hydration nutrition and as medical treatment.” Id., 37], N.E.2d, at 42 Ill.Dec. at [139 at 296. Cf. Inc., McConnell v. Beverly Enterprises-Connecticut, 692, 705, (1989) Conn. 553 A.2d (right withdraw artificial nutrition and hydration found the Connecticut Support Act, Removal of Life Systems which “provid[es] *39 and of the common law for the exercise guidelines functional self-determination”; attending physi- of rights constitutional finding that after to remove treatment cian authorized condition, of obtaining consent in a terminal is patient). wishes of considering expressed family, and [Footnotes omitted] session, Assembly the Common- General of

In the 1992 (Dece- to Title Pennsylvania of enacted amendments wealth Fiduciaries) dents, Pennsylvania and Consoli- Estates of alia, incapacitated persons, concerning, inter dated Statutes and liabili- guardians, powers, of their duties appointment ties, whereby person may a establishing procedure to a indicating physi- execute advance written declaration continue, initiate, withhold or to person’s cian desire in the life-sustaining medical withdraw certain to in a is and is determined person incompetent event unconscious; further permanently terminal condition to be statutory in terms of incapacitated persons providing procedure, guardians, guardians’ scope, appointment Preamble Act No. duties liabilities.14 See powers, (Purdon’s 1992). Pa.Leg.Serv., No. 1992-24 Assembly session of the General during Enacted same For Health Chapter captioned: Advance Directive was Act”). (hereinafter seq. § et It has Act “the Id. at Care competent all right its purpose effectuation own medical care” relating “to control decisions their adults 5402(a).15 §at a declaration to that effect. Id. by executing However, concerning Act no presumption creates a declaration has not executed any person intent who Maryland legislation: recently passed similar Health Care Deci- has 14. Measures, Chapter H.B. No. Life-Sustaining sion Act— Regular Session. Section 5402 reads: qualified assembly general competent that all adults have find relating This right to to their own medical care. control decisions subject society, such as the maintenance to certain interests of preservation profession and the of ethical standards in the medical technological protection proce- life. Modern medical human beyond prolongation natural possible dures of human make procedures suffering application to an individual limits. The of some

consent to the use or withholding of life-sustaining procedures in the event of a terminal condition or a of permanent state 5402(b). § unconsciousness. Id. at Despite the limitations adults, noted the Act’s “competent” reference to I look to it as a with backdrop, along the case law and treatises on the posed issue for our review. many The Act is but one of elements making up approach” my “functional proposed resolution of this particular case.

Further, it must be noted that the Act renders immune *40 from criminal and liability any physician civil or health care in provider participates who determining the course of life- 5409(c). 5407(a), §§ sustaining treatment. Id. at (under The Act Chapter titled: “Incapacitated Per- sons”) recognizes every that individual unique has needs and Thus, differing promote general liabilities. to the welfare Commonwealth, all citizens of the Legislature: the ... system a which permits incapacitated established] persons to participate fully possible as in all decisions them, which which persons meeting assists these in affect the essential requirements their health and physical for safety, protecting rights, their managing their financial re- sources and or developing regaining their abilities to the maximum possible extent and which accomplishes these objectives through the use the least restrictive alterna- tives; and recognizing that when guardianship further services necessary, are it is to important facilitate finding suitable individuals or entities to serve willing as guardians. added). §

Id. at (Emphasis The procedure to be adhered to in assessing incapacity one’s is as follows: process dying may difficult and uncomfortable cause loss of

patient dignity only precarious and secure continuation of a and prolongation burdensome of life. "Incapacitated person” ability means an adult whose to receive and effectively evaluate information any way and communicate decisions in impaired significant is partially totally to such a extent that he is or manage unable to his require- financial resources or to meet essential physical safety. ments for his health and court, upon presen and upon petition, hearing and The evidence, person may find convincing dear and tation of incapacitated to Commonwealth be domiciled estate.[17] guardians person or his or guardian appoint alleged be interested may any person petitioner The The court dismiss welfare. incapacitated person’s not has proceeding it determines that the proceeding where alleged incapacitated or been instituted to aid benefit the incomplete provide or fails to person petition or that the * * * Supreme The Court proceed. sufficient facts to * * * purpose. establish a uniform citation this shall alleged incapacitated be made on Personal service shall be petition shall person, and the contents and terms of possible language maximum extent explained * * * likely is most to understand. terms individual in such hearing given be petition shall [NJotice residing persons court direct all manner as the shall juris Commonwealth who are and would within the sui alleged incapacitated in the estate of the entitled share time, if he that to the person person if he died intestate at time, to the institution person died intestate at alleged incapacitated residential services providing *41 direct, court person may and other as the parties to such providers.... including other service (e) include petition ... shall Petition contents. —The * * * it is over which specific incapacity areas and guardian assigned powers be requested that If limited or guardian. a qualifications proposed shall sought, petition of the estate is plenary guardian include, income value of the estate and net gross also all sources to the extent known. from requires Legislature convincing "clear evidence” is If the that and judged "competent” person is be the standard which a once person or "incompetent”, guardian appointed to have a his estate, legislation public policy and an I consider such an evocation of may legislative purpose approach to the take indication of as courts dealing persistent vegetative in with a a state.

(f) Who appointed guardian. may court —The appoint guardian any qualified individual.... The court shall not ... appoint person whose interests conflict with those of the incapacitated.... Any family relationship to not, itself, such individual shall be considered as an interest alleged incapacitated person.... adverse to the (e) (f) added). 5511(a), § Id. at (Emphasis & process a determination of making incapacity appointing guardian, Orphans’ Court shall consider and make of fact specific findings covering:

(a) cases, incapacity. Determination of all the court —In shall specific findings concerning: consider and make of fact

(1) any disability The nature of condition or which impairs capacity the individual’s to make and communi- cate decisions.

(2) The capacity extent of individual’s to make and communicate decisions.

(3) services, The if guardianship any, light need for of such factors as the availability family, friends and other supports making to assist the individual decisions existence, in light of the if of advance any, directives such as durable powers attorney or trusts.

(4) type guardian, limited or plenary, person or needed based any estate on the nature of condition disability capacity and the to make and communicate decisions.

(5) The duration of the guardianship. (6) prefer The court shall guardianship. limited (b) ...

(c) Plenary guardian of the person. may ap- court —The point plenary guardian of the person only upon finding the person totally incapacitated and in need of plenary guardianship services. *42 (c) added). 5512.1(a), §

Id. at (Emphasis type As for the of evidence needed to conclude one is incapacitated, Legislature the has dictated: present must testi- petitioner

To the incapacity, establish qualified deposition in or from individuals mony, person by evaluating individuals with and by training experience alleged the the which incapacities type petitioner, incapacities alleged the nature and extent of the establishes mental, person’s emotional and disabilities and the condition, skills. The behavior and social physical adaptive the services present regarding must also evidence person alleged for the being requirements utilized to meet essential safety, manage incapacitated person’s physical health regain the develop the financial or to or person’s resources abilities; types evidence assis- person’s regarding less why and as to no restric- required person tance re- and evidence appropriate; tive alternatives would person’s the extent of the garding probability change. or incapacities may significantly lessen §at 5518. Id. appointed position,

In it shall be the complying with his/her (and in regard act duty person of the to assert guardian to) person. rights incapacitated and best interests of the inca- preferences wishes and doing “Expressed so: possible to the respected greatest shall be pacitated person Lastly, specified § unless otherwise extent.” Id. at “shall appointing guardian, appointee the court’s order duty not have the to: power (1) incapacitated person on Consent behalf abortion, sterilization, electro-convulsive psychosurgery, therapy healthy body organ. removal or

(2) or divorce of the marriage Prohibit the consent incapacitated person.

(3) incapacitated person Consent on behalf of the or any experimental biomedical behavioral performance or any or biomedical procedure participation experiment. behavioral

(e) Knowledge objection. hearing to determine —In consent to a guardian shall be ordered to whether omission, if knows has specific guardian act or *43 incapacitated objection reason to know of the to person’s omission, the action or objection whether such had been expressed or prior subsequent to to the determination of incapacity, guardian report shall to the court such or knowledge information.

(f) granted guardian. Powers and duties not —The court not grant guardian powers to a controlled statute, to, other but including, not limited the power: (1) incapacitated person To admit the to an inpatient psychiatric facility mentally or State center re- for tarded.

(2) consent, To on behalf of the incapacitated person, to relinquishment of the person’s parental rights. (g) Criminal civil immunity. the absence of —In gross negligence, misconduct, or recklessness intentional government, a unit of local or non-profit corporation ... guardianship support agency as a appointed guardian not criminally civilly shall be liable or liable for damages duties as a performing guardian person, authorized under this chapter. added).18 §

Id. at 5521(d)-(g) (Emphasis clearly As is evident from Section where an individual has his or espoused regarding her intentions the use of life- sustaining prior becoming treatment19 their incapacitated, Act, person adjudicated 18. Under Section 3206 of the who has been § incapacitated pregnant under 20 Pa.C.S. is and under the age parent shall not have an abortion unless the consent of the or consent, guardian deciding grant is obtained. “In whether such pregnant parent guardian only woman's or shall consider their child's or ward’s best interests." aspect acting appears This in the "best interests” of a ward Sections 4412.2 and 5521 of the Act. "Life-sustaining treatment” is defined at Section 5403 of the Act: that, Any procedure or intervention when administered ato qualified patient, only prolong process dying will serve or to permanent maintain the in a state of Life- unconsciousness. hydration treatment shall include nutrition and adminis- by gastric intravenously any tered tube or other artificial or qualified patient specifically invasive means the declaration so if provides. [Emphasis added] wishes “shall respected greatest to the possible extent.” Therefore, in those cases person where the has documented or verbalized an in respect intention to life-sustaining treatment in advance of incapacitation, a wish that life-sustaining treat- with, ment not be if implemented complied possible.20 to be Although courts have had comparatively difficulty little die”, recognizing the existence of a “right to there has been *44 substantially more uncertainty about how it should be imple- mented, especially in the case patients of who lack decision- Meisel, Die, making capacity. § Right supra to at 6.1. As the remarked, United Supreme States Court after a reviewing dealing host cases with discontinuance of artificial nutrition hydration and to an incompetent: “As these cases demon- strate, the common-law doctrine of informed consent is viewed generally as encompassing competent of a individual that, to refuse medical treatment. Beyond these cases demon- strate similarity diversity both and in their to approaches decision of agree what all is a perplexing question with Cruzan, unusually strong moral and ethical overtones.” su- pra, 497 U.S. at 110 S.Ct. at 2851.

In those instances where there is a lack of a expressed bar, preference, as is the case at court-defined, criteria come into play making treatment decision. See Note, Quinlan Revisited, In re supra, Const.L.Q. 15 Hast. 487.

I my Act, take directive from the out of which semblance of form and substance can gleaned setting perimeters be when dealing alleged with an incapacitated person; to-wit:

1) Court may involvement begin petition being with a filed by any person in the alleged incapacitated per- interested welfare, 5511(a). §§ son’s 20 Pa.C.S.

2) Appointment guardian follow, of a person may which may include a family having member no adverse interest, (f). 551(e), § 20 Pa.C.S. possible

20. Such is not with Fiori he because never demonstrated his intentions, treatment, as incapacitated. to medical if he were to become 3) in a court incapacitation is to be made Assessment of may augmented by independent evalua- setting and be court, 20 appropriate by if deemed incapacity, tion (d). 5511(a), § Pa.C.S.

4) to persons all sui given of the shall be proceeding Notice alleged estate to share juris and entitled estate, and such other incapacitated person’s intestate direct, § 20 Pa.C.S. the court persons 5) testimony be deposi- must incapacity Evidence the individual’s qualified from evaluate tion individuals is to be elicited likelihood incapacity, evidence change, lessen or Pa.C.S. incapacity may significantly § 5518.

6) person’s necessary to establish proof level evidence, 20 convincing” shall “clear “incapacity” 5511(a). § Pa.C.S.

7) appoint guardian it appropriate If the court deems to assert duty guardian shall be the of the person “[i]t person”, incapacitated rights best interests preferences” wishes and “expressed the caveat that with *45 possible, be followed the shall where incapacitated person § 5521. 20 Pa.C.S.

8) the guardian, and duties of a outlining powers In the consent, the on make allowance of may provision court to withdraw or withhold incapacitated person, of the behalf 5521(d). treatment”, § cf. 20 Pa.C.S. “life-sustaining 9) or of “life- The to allow the cessation denial conclusion court,21 i.e., by is to be made sustaining treatment” process pointed judicial is out that the cumber It has been some 21. some, interjects delays significant into the decision- inconvenient and incompetent cut making process, rights person are such that adjudication because dies before final could obtained. short Meisel, he/she Die, cases). (Citing way, § Right supra at Stated another 6.9 family physician(s) and to make. Id. at be left to the should 258, cases); (Citing Browning, 261 (Supp.1993) § In re 543 So.2d 8.6 Morrison, 1990); (Fla. (Fla.Dist.Ct.App.1989), 4 re aff'd 568 So.2d Jobes, 304, 530, (1988), citing In Cal.App.3d Cal.Rptr. 535 re 206 253 394, 434, Note, (1987); Right 451 In re Storar: The 108 N.J. 529 A.2d Patients, 1087, (1982). Incompetent 1104 43 U.Pitts.L.Rev. Die

665 exercise the allowing guardian court enters an order “life-sustaining to refuse the incapacitated person’s right treatment”, only purpose prolong where the served is to in a state of process dying or to maintain the unconsciousness, § 20 permanent Pa.C.S.

10) as irrever- incapacitated person diagnosed The has been state; vegetative comatose or in a sibly persistently 11) receiving “life-sustaining The incapacitated person Act, § 5403. treatment” as defined under the 20 Pa.C.S. 12) incapacitated Two one of whom be the physicians, concur in the person’s attending physician, diagnosis.22 13) incapacitated person’s right outweighs any inter- Commonwealth, does, normally ests of the as it 20 Pa.C.S. 5402(a), i.e., § interest incapacitated person’s it is best treatment,” to -withhold or 20 Pa. “life-sustaining withdraw 3206, §§ C.S. 5512.1 and 5521.

I point weight would out that the to be each of the given proposed vary particular criteria a court will -withthe facts Greenspan, each case. Cf. In re Estate 137 Ill.2d (1990). 860, 867, Ill.Dec. Additionally, 558 N.E.2d because of the inherent sensitive nature of a to die” “right case and the cessation necessarily irrevocable nature order, I would allow for review of the instant appellate type tribunal, permit case and to the scope appellate broadest with the Court not being by any bound inferences deduc- preference I find that this Commonwealth’s avowed for life over the (as Act) precedence cessation of life manifested in the takes over the Moreover, speed-factor resolving "right although to die" issue. extant, delays judicial making general involved in decision are statutory customary procedures there are available in this Com expedited emergency monwealth for resolution with access to our 301(e) Pa.R.App.P. Dept. See courts. v. Director Missouri Cruzan Health, 2841, 2852-53, U.S. 110 S.Ct. L.Ed.2d (1990), wherein it was written: State is entitled to consider that a “[A]

judicial proceeding regarding incompe to make a determination an one, may very tent’s wishes well not be an adversarial with the added guarantee finding adversary process brings of accurate fact that the (Citation omitted). with it.” See, 1, 860, e.g., Greenspan, In re Estate 137 Ill.2d 146 Ill.Dec. 22. 867, 1194, Grant, (1990); Guardianship 558 N.E.2d 1201 In re 109 545, 445, (1987). Wash.2d 747 P.2d 456

666 Terwilliger, Pa.Super. In 304 tions of the court. See re lower Bender, (1982); Pa.Super. 261 450 A.2d 1376 Bender (1978) A.2d dealing re with Terwilliger, supra, this Court did As sterilization necessary to authorize the proof the standard of of proof I for a quantum of an would allow incompetent, life measured necessary sanctity to the to be discontinue that an of “clear evidence equally convincing” level and high are being incapacitated person the “best interests” the life the medical prolong desire to and Society’s served. of ethical standards are factors community’s maintenance weight than given greater the to be no go equation, into each interests,” which, necessity, “best incapacitated person’s the the treatment into consideration whether requires taking process or to maintain “serv[ing] prolong dying to only permanent state of unconsciousness.” patient and §§ A life of substance mean- Pa.C.S. 5403. devoid patient may ignored not be or irreversibly in an comatose ing ability to de because modern medicine’s rendered minimus natural limits. Id. beyond extend surrogates to the basic which have evolved for Of standards to or consent life-sus- decide whether to withdraw withhold i.e., treatment, judgment” “substituted the “best taining Meisel, Die, 9, I standards, ch. Right supra, see interests” and “clear convinc- opt hybrid would “best interests” approach. evidence ing” standard, judgment surrogate

Under substituted must patient’s rights make exercising incapacitated life-sustaining on the forego treatment decision whether had patient patient of what the would have decided basis Die, Meisel, Right supra been able do so. concisely were forth in In re perimeters of the standard set N.J. at A.2d at 1232: Conroy, supra, test, life-sustaining limited-objective Under from Claire patient be withheld withdrawn trustworthy Conroy’s situation when there is some evidence treatment, have that the would refused is satisfied that it is clear that burdens decision-maker

667 mean By of that life for him. this we outweigh the benefits and will continue to suffer patient suffering, that the life, of his unavoidable throughout expected duration (the prolonged pain of his and that the net burdens pain, less the amount of his life with the treatment suffering likely experience would patient and duration of that the pain withdrawn) markedly outweigh any if the treatment were intellectual satis- enjoyment, emotional physical pleasure, be able to derive from life. patient may faction that the still limited-objective permits This standard the termination ex- unequivocally for a who had not patient treatment it becoming incompetent, when is pressed his desires before question merely prolong clear the treatment would patient’s suffering. for- proper patient Under the circumstances —where a was merly competent judgment substituted standard is —the Rosebush, supra, test. In re 491 N.W.2d appropriate (Citation omitted). However, applied never-competent as the substituted standard is patients, judgment inappropriate patient because it cannot be ascertained what choice the would (Citations omitted). if I competent. have made Id. would that, therefore has patient compe- hold where the never been incompetent expressing tent or has become without ever efforts, life-support decision-making view to terminate test guides guardian that better is the “best interests” stan- dard, supplemented convincing with the clear and evidence of proof Majority contrary, formula. Since the holds to the I cannot approach. embrace such an

For the “best interests” standard was explanatory purposes, Grant, Guardianship summarized In re 109 Wash.2d modified 757 P.2d P.2d 567-568, (1987), (1988), follows:

There will be situations where it cannot be ascer- many tained what choice the would make if competent. cases, guardian good-faith such must make a determina- withholding tion of whether the of life incompetent patient’s would serve the best interests. The following is a nonexclusive list of the factors which should be in making considered this determination: [Ejvidence patient’s present physical, level about emotional, cognitive functioning; degree sensory, condition, treat- resulting from the medical physical pain treatment, ment, respectively; and termination humiliation, dignity prob- and loss of dependence, degree treatment; the life *48 resulting from condition ably and with without prognosis recovery and expectancy effects, risks, treatment; the and the side options; various of options. benefits of each those exis- dignified In of an individual to a balancing right the tence, a of prolongation without and burdensome precarious life, in hu- maintaining interest against Commonwealth’s in being preserved the medical man life and ethical standards I a of the “best interests” of community, melding find that convincing under a clear and patient approach, scrutinized standard, salutary evidence achieves the features emblematic human dignity a life and the society that cherishes an acknowledge a who individual’s people existence. We are Cruzan, life, liberty pursuit happiness. right to (State convincing to a supra authority has establish clear has its in right case, right in a to die which roots standard 14th Amendment of the Consti- liberty interest of the U.S. tution). objective, prudent I deem it to have To achieve this as a source of on dispute-resolution the court involved As the as life versus death. Missouri question so sensitive point: noted on this Supreme Court has ability to decide an issue self law—the Autonomy means It is any to or to other. responsibility without reference found rights to claim that which are logically inconsistent Rights spring in the Bill of and which lurking shadow the autonomy by can be exercised personal from concerns for rigid absent the most of formalities.... another that common refuse do we believe law to Nor personal autonomy exercisable treatment —founded —is A by guardian’s power third absent formalities. party authority, choice from the state’s third arises party exercise guardian The is rights not the constitutional ward. patriae power. delegatee parens of the state’s omitted), (Citation Harmon, at 425 supra, Cruzan v. S.W.2d Health, Director, Dept. v. Missouri f'd Cruzan af (1990). 2841, 111 110 S.Ct. L.Ed.2d U.S. foremost, actions are motivated the desire my

First and Belchertown Saik- preserve Superintendent life. See (1977). ewicz, capacity, 370 N.E.2d 417 373 Mass. backdrop I facts of the relevant against have examined the authorizing a legislation case law and to arrive at a decision life-sustaining guardian to withdraw withhold is to be made incapacitated person. Such a decision convincing” evidence hearing court after a which “clear and incapaci- that it is the “best interests” of the forthcoming life-sustaining tated to cease such treatment. person in reaching has chosen an alternate course Majority result, i.e., life-sustaining same the cessation of potentially for one in an state. Howev- vegetative measures irreversible er, Majority does not allow for the court’s involvement in life”), this most sensitive of issues where (“right especially *49 incompetent speak the can neither act nor for himself. There- fore, hold, I with the and for all the part company Majority supra, participation reasons articulated that court under the acting this with in the particular facts of case are consistent his patient unduly invading bests interests of the without privacy. to guidance, genuineness guardian’s the court’s of a

With not since what kept motives be discovered and secretive life, and precious in the balance is one’s a valuable weighs not commodity proper inqui- which should be curtailed without end, I an alternate ry justification. espouse as to Toward that I believe approach Majority’s position, to the which better in patient Joseph serves the interests of such a as Daniel Fiori and the in particular public general.23 allow the Majority One last observation is that the would Fiori, patients, family fate of such as left to the devices of receiving hydration It is true that Daniel had been nutrition and for prognosis continuing up years, has the of to do so for to 10 17 and he longest by years. more The recorded survival such means extended life 417, years. Brophy England Hosp., 398 Mass. for 37 See v. New Sinai 670 resolve, an issue which even physicians

member and two soul-searching Majority requires' concedes an element of introspection by the heart-wrenching decision-makers and Obviously, the patient. will be in the best interest of what in medical condition interposed equation in all of which is made consul- recuperation, for prospects professionals. tation with medical are deciding before what choices pursued Given course viable, have necessity parties the interested would most checklist consistent with gone through mental factual precedent my to be satisfied as condition criteria proposed life-sustaining similar to patients measures cessation this writer is that only proposed Fiori. additive Mr. setting in a and not in the corridor discourse occur court would, my To less hospital or a doctor’s office. do some hangs in the opinion, patient be a whose disservice balance. Majority’s adoption

This disservice is manifested family qualified ap- “a physicians” close member and two Doe, 626, (1986); Guardianship 411 Mass. 637 see also 497 N.E.2d 512, 1263, (1992) (10 Guardianship years); re N.E.2d 1266 583 (8 Grant, (1987) years); 455 In re 109 Wash.2d P.2d 860, 862, Greenspan, Ill.2d 146 Ill.Dec. N.E.2d Estate of (1990) (17 persistent years to be record for then stated life-support). state on vegetative provided I have with statistics on number While not been presidential patients systems, 1983 a commission life-support on 5,000 approximately perma- any were that at one time there estimated Life-supporting treat- nently patients in United States. unconscious many physician reported patients. One is withdrawn from such ment single patients [at commission that "between 500 to the university hospital Pittsburgh, Pennsylvania] life-sustaining had have *50 important corti- permanent because of loss of the treatment withdrawn Study the of layers cal of the brain.” President’s Commission Behavioral Re- in Medicine and Biomedical and Ethical Problems search, Report Deciding Forego Life-Sustaining A the Treatment: on Medical, Ethical, Legal 176-177 & n. and Issues in Treatment Decisions Drahick, (1983); Conservatorship Cal.App.3d 200 245 Cal. of (1988). Rptr. 847-848 n. Steinbeck, areas, with See this most of I act caution. In sensitive Coons, Recovery Vegetative Carrie State?: the Case Persistent of from (1989); n. Rptr. Appellant’s at 16 Hastings Center Brief a continued arbiters of comatose proach as the by providing any I not existence, which believe flawed phrase. This lack scope meaning and of insight as to the has society in a which under- uncertainty breeds guidance knit family a concentric metamorphosis tightly a from gone (which decision-making) all levels of familial unit interacted at by an plagued unprecedented to one of distended families divorce rate.

Moreover, family unit has contribut- the deterioration homes, single-parent of a patchwork ed the creation establishing a envi- marriages, step-parent second third and bonding non-blood straining family among ronment and by re-marriage by brought together relatives alienated spectra scenarios raise who varying divorce. Such in Does a Fiore-type step- situation: precedence takes or sibling spouse life or death of parent’s concerning decision parent spouse? natural or precede the wishes of a divorced deceased, are do the wishes of a both natural parents Where uncle, aunt, priority take sibling, grandparent cousin and/or irreversibly member is comatose? Is patient/family where the it to in factor or is be looked at to be sole sanguinity re-marriage other bonding by lineage with combination deciding hierarchy decision-making? in Should factors in this life- deciding partner(s) have a voice in their physicians process? death which surface and light multiplicity scenarios piece-meal approach, by Majority’s

remain unanswered inevitably by the require resolution of which will intervention Majority’s non-court-involve- courts and is at odds "with application I embrace its of a formula position, ment cannot best disingenuous which is and death situation wake. There- uncertainty stability creates more than its fore, concern this most engendered maelstrom of warrants, my opinion, impartial sensitive of issues hand and doctors alike family-member of the courts to assure that benefltting are interests aimed at motivated condition, and not some expedí- particular his/her *51 672 interest. The patient’s far from the

ent measure removed objective. achieves that supra of factors set forth checklist on this issue advances Majority’s posturing Since the involvement, my view of court approach alternate at odds with Majority’s holding that of the portion I dissent to respectfully the contrary.24 to

CAVANAUGH, Judge, dissenting. mother, Fiori and his Joseph of Daniel tragic plight com- Sherman, challenge which presents Rosemarie issues are confounded because judicial process. of the We petence law, and theolo- metaphysics where presented the issue is one intersect, thus, overtaxing poor powers provide our gy solution. proper dispositions I the sensitive and reasoned

While esteem myself agreement I find colleagues, learned espoused by my Attorney Pennsylvania General of position with the of the coincides with his. position which adopt would I find that the court erred say is to that would Which Fiori, who, after ad litem for Mr. guardian failing appoint all, subject as the matter continued human existence has his case, one not overlook the benefits Albeit not evident in this policy beneficiary flowing patient’s under a insurance to a comatose family is the "close member” the heir to a estate or whether input life-support measures should be discontin- providing into whether case, be undercurrent of self-interest must ued. If such be the judicial light evaluate its brought under a to the fore and scrutinized implicit approval extinguishing Anything genuineness. less would legitimacy judicial concern or intervention assure a life without of the motives. advance the upon proffered this writer would Reliance the criteria family allow the motive of the "close interests of the best impairing of the issue. be examined without resolution member” to Pa.Super. Terwilliger, 450 than In re One need look no farther (1982) (tubal mentally incompetent) ligation to confirm A.2d 1376 serving court-supervised the best interests of such intervention fact, promulgation Terwilliger guidelines, patient. since the Court, only appealed once to this adherence to its directions has been feasibility looking courts for a to the to the which is silent testament authorizing privacy. invasion of one’s of factors in advance of checklist (en C.W., (1994) Pa.Super. 640 A.2d 427 See In Interest banc). be shown to Fiori now. No less concern should fundamen- was basic and I would hold this litigation. this Dilliplaine which transcends strictures tal error (1974). Co., I Pa. A.2d 114 Valley Lehigh Trust *52 treat- medical care and further hold that would convincing and should withdrawn absent ment not be clear life-sustaining intent to terminate evidence Mr. Fiori’s for proceedings I remand would reverse and procedures. requirements. consistent with these A.2d EDWARDS, Appellant, Charles

v. Waters, M. Michael J. and Aimee BRANDYWINE HOSPITAL Representa Margolies, Margolies, Price Personal and Richard Margolies, M.D. M. Price M. Price and tives of Estate of Margolies Associates, Appellees, EDWARDS, Appellee,

Charles Waters, J. M. Michael Aimee BRANDYWINE HOSPITAL Margolies, Representa Margolies, Personal Richard Price Margolies, M.D. M. Price M. Price tives of the Estate of Associates, Margolies Brandywine Hospital.

Appeal of Pennsylvania. Superior Court Argued Dec. 1994.

Filed Jan.

Case Details

Case Name: In Re Fiori
Court Name: Superior Court of Pennsylvania
Date Published: Jan 17, 1995
Citation: 652 A.2d 1350
Court Abbreviation: Pa. Super. Ct.
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