Opinion
In this case we are called upon to decide whether a competent adult patient, with serious illnesses which are probably incurable but have not been diagnosed as terminal, has the right, over the objection of his physicians and the hospital, to have life-support equipment disconnected despite the fact that withdrawal of such devices will surely hasten his death.
Petitioners are William Bartling and his wife, Ruth Bartling. Real parties in interest are the Glendale Adventist Medical Center (Glendale Adventist) and Mr. Bartling’s treating physicians.
The ruling challenged in this petition is the denial of petitioners’ request for an injunction ordering real parties to disconnect Mr. Bartling’s ventilator (commonly called a “respirator”), a machine which sustains the patient’s breathing. Although petitioners filed an appeal from the superior court’s order, they also filed the within petition, claiming that the situation was too urgent to await the appeal. Petitioners were unfortunately correct, for Mr. Bartling passed away the afternoon before the hearing on this petition.
Both sides in this case have urged us to address the merits of the petition and formulate guidelines which might prevent a reoccurrence of the tragedy which befell Mr. Bartling. We agree that in light of the important questions raised, this court should exercise its discretion to render an opinion in this case despite its mootness.
(Daly
v.
Superior Court
(1977)
At the time of his death, Mr. Bartling was 70 years old and suffered from emphysema, chronic respiratory failure, arteriosclerosis, an abdominal aneurysm (abnormal ballooning of the main artery passing through the abdomen to the legs), and a malignant tumor of the lung. Mr. Bartling also
Mr. Bartling entered Glendale Adventist on April 8, 1984, for treatment of his depression. A routine physical examination, including a chest X-ray, was performed, and a tumor was discovered on Mr. Bartling’s lung. A biopsy of the tumor was performed by inserting a needle in the lung, which caused the lung to collapse. Tubes were inserted in Mr. Bartling’s chest and through his nasal passage and throat in order to reinflate his lung. Because of his emphysema, the hole made by the biopsy needle did not heal properly and the lung did not reinflate. While Mr. Bartling was being treated with antibiotics to promote healing of the lung, a tracheotomy was performed and he was placed on a ventilator. Mr. Bartling remained on the ventilator until the time of his death, and efforts to “wean” him from the machine were unsuccessful.
On several occasions in April, Mr. Bartling tried to remove the ventilator tubes. To prevent accidental or deliberate disconnection of the ventilator tubes (or any of the other tubes to which he was attached), Mr. Bartling’s wrists were placed in “soft restraints.” Despite requests from both Mr. and Mrs. Bartling, Glendale Adventist and Mr. Bartling’s treating physicians refused to remove the ventilator or the restraints.
In June of this year, petitioners filed a complaint (subsequently amended) in the superior court seeking damages for battery (unconsented medical treatment), violation of state and federal constitutional rights, breach of fiduciary duty on the part of Glendale Adventist and Mr. Bartling’s treating physicians, intentional infliction of emotional distress, and conspiracy. Petitioners sought an injunction restraining real parties from administering any unconsented medical care to Mr. Bartling. This included “forcing Plaintiff to undergo mechanical breathing through the ventilator” and other medical procedures. 1 Attached to the complaint were:
(1) A “living will,” signed by Mr. Bartling with an “ x” and properly witnessed, which stated in part: “If at such time the situation should arise in which there is no reasonable expectation of my recovery from extreme physical or mental disability, I direct that I be allowed to die and not be kept alive by medications, artificial means or heroic measures.”
(3) A “Durable Power of Attorney for Health Care,” 2 executed by Mr. Bartling, appointing Mrs. Bartling as his attorney-in-fact. In this document, Mr. Bartling stated in part: “My desires concerning future medical and supportive care, which I direct my attorney-in-fact to follow, are as follows: ... I am totally unable to care for myself, and believe that I am dependent on a mechanical ventilator to support and sustain my respiration and life. I continuously suffer agonizing discomfort, pain and the humiliating indignity of having to have my every bodily need and function tended to by others. I do not wish to continue to live under these conditions. It is therefore my intent to refuse to continue on ventilator support and thereby to permit the natural process of dying to occur—peacefully, privately and with dignity. I direct my attorney-in-fact to honor my desires in this regard, and to refuse ventilator support, at such time as I am unable to do so for myself. I am aware that impairment, incapacity and unconsciousness may occur as a result of my refusal of ventilation, but I desire that none of these be deemed to be a medical emergency.”
Mr. and Mrs. Bartling and Mr. Bartling’s daughter Heather all executed documents in which they released Glendale Adventist and its doctors from any claim of civil liability should the hospital and doctors agree to honor Mr. Bartling’s wishes.
Despite these strong and unequivocal statements from Mr. Bartling and his family, his treating physicians refused to remove the ventilator and refused to remove the restraints which would .allow Mr. Bartling to disconnect the ventilator himself should he choose to do so.
Mr. Bartling’s videotape deposition was taken on the day before the superior court hearing, June 21. Mr. Bartling could not speak but could nod or shake his head to indicate yes or no answers. Mr. Bartling said that he wanted to live, but did not want to live on the ventilator. He did understand that if the ventilator were removed he might die.
It was the opinion of Mr. Bartling’s treating physicians, presented to the trial court by way of declarations, that Mr. Bartling’s illness was not terminal and that he could live for at least a year if he was “weaned” from the ventilator. However, the doctors opined in their declarations that “weaning was unlikely because of his medical and psychological problems that were not under control.”
Although they did not challenge his legal competency, the doctors and Glendale Adventist questioned Mr. Bartling’s ability to make a meaningful decision because of his vacillation. This opinion was based on the declarations of several nurses who related instances in which the ventilator tube accidentally detached and Mr. Bartling signalled frantically for them to reconnect it. Mr. Bartling also made several statements to his doctors and nurses to the effect that he wanted to live and did not want the ventilator disconnected. 3
From an ethical standpoint, declarations were submitted to the effect that Glendale Adventist is a Christian hospital devoted to the preservation of life, and it would be unethical for Glendale Adventist’s physicians to disconnect life-support systems from patients whom they viewed as having the potential for cognitive, sapient life.
The hospital and doctors also expressed concern about their potential civil and criminal liability should they accede to Mr. Bartling’s wishes and disconnect the ventilator.
The court relied substantially on
Matter of Quinlan
(1976)
We conclude that the trial court was incorrect when it held that the right to have life-support equipment disconnected was limited to comatose, terminally ill patients, or representatives acting on their behalf.
There is no question in our minds that Mr. Bartling was, as the trial court determined, competent in the legal sense to decide whether he wanted to have the ventilator disconnected. The statements made by Mr. Bartling in his declarations and in the other documents executed by him which were submitted to the trial court reflect the fact that Mr. Bartling knew he would die if the ventilator were disconnected but nevertheless preferred death to life sustained by mechanical means. He wanted to live but preferred death to his intolerable life on the ventilator. The fact that Mr. Bartling periodically wavered from this posture because of severe depression or for any other reason does not justify the conclusion of Glendale Adventist and his treating physicians that his capacity to make such a decision was impaired to the point of legal incompetency. (See
Lane
v.
Candura, supra,
Having resolved the threshold issue of whether or not Mr. Bartling was legally competent, we turn to the major issue in this case: whether the right of Mr. Bartling, as a competent adult, to refuse unwanted medical treatment, is outweighed by the various state and personal interests urged by real parties: the preservation of life, the need to protect innocent third parties, the prevention of suicide, and maintaining of the ethics of the medical profession.
(Superintendent of Belchertown
v.
Saikewicz
(1977)
Real parties argue that the interests of the state should prevail. We disagree., In California, “a person of adult years and in sound mind has the
California has also enacted the Natural Death Act (Health & Saf. Code, § 7185 et seq.) which provides in part: “The Legislature finds that adult persons have the fundamental right to control the decisions relating to the rendering of their own medical care, including the decision to have life-sustaining procedures withheld or withdrawn in instances of a terminal condition.” (Health & Saf. Code, § 7186.) The
Barber
court noted that while the Act was specifically addressed to only a limited number of persons, “It is clear from the legislative findings and declaration provided in Health and Safety Code section 7186, that the Legislature recognized such a right to control one’s medical treatment, especially in circumstances such as presented here.” (
The right of a competent adult patient to refuse medical treatment has its origins in the constitutional right of privacy. This right is specifically guaranteed by the California Constitution (art. I, § 1) and has been found to exist in the “penumbra” of rights guaranteed by the Fifth and Ninth Amendments to the United States Constitution.
(Griswold
v.
Connecticut
(1965)
Balanced against these rights are the interests of the state in the preservation of life, the prevention of suicide, and maintaining the ethical integrity of the medical profession.
6
The most significant of these interests is the preservation of life. This is of prime concern to Glendale Adventist, which submitted a declaration to the effect that it is a Christian, prolife oriented hospital, the majority of whose doctors would view disconnecting a life-support system in a case such as this one as inconsistent with the healing orientation of physicians. We do not doubt the sincerity of real parties’ moral and ethical beliefs, or their sincere belief in the position they have taken in this case.
7
However, if the right of the patient to self-determination as to his own medical treatment is to have any meaning at all, it must be paramount to the interests of the patient’s hospital and doctors. The right of a competent adult patient to refuse medical treatment is a constitutionally guaranteed right which must not be abridged. As the court stated in
Satz
v.
Perlmutter, supra,
Several doctors also expressed the view that disconnecting Mr. Bartling’s ventilator would have been tantamount to aiding a suicide. This is not a case, however, where real parties would have brought about Mr. Bartling’s death by unnatural means by disconnecting the ventilator. Rather, they would merely have hastened his inevitable death by natural causes.
(Satz
v.
Perlmutter, supra,
Aside from their moral and ethical objections, real parties have expressed the fear that had they complied with petitioners’ wishes they might face criminal and civil liability. As to criminal liability, this was substantially answered in
Barber
v.
Superior Court, supra,
“Although there is not complete agreement among the courts that have addressed the issue in the civil context, we agree with those which have held that requiring judicial intervention in all cases is unnecessary and may be unwise. [Citations.]” (147 Cal.App.3d at pp. 1021-1022.)
The words of the
Quinlan
court are appropriate here: “[T]here must be a way to free physicians, in the pursuit of their healing vocation, from possible contamination by self-interest or self-protection concerns which would inhibit their independent medical judgments for the well-being of their dying patients. We would hope that this opinion might be serviceable to some degree in ameliorating the professional problems under discussion.”
(Matter of Quinlan, supra,
Our holding that the court below erred in this case is of little consolation to Mr. Bartling. His death renders moot that portion of the petition which seeks an order compelling the superior court to grant the injunction sought. However, petitioners have also requested an award of costs and attorneys’ fees under the “private attorney general” theory (Code Civ. Proc., § 1021.5). The case is remanded to the superior court for a determination as to whether attorneys’ fees pursuant to section 1021.5 are appropriate. Petitioners’ request for costs is also to be considered by the superior court.
Feinerman, P. J., and Ashby, J., concurred.
A petition for a rehearing was denied January 24, 1985.
Notes
Petitioners in their petition for writ of mandate before us describe the relief sought in the superior court as follows: “Petitioners sought to restore the proper status quo—a competent person being in control of his or her own medical care and body . . . either consenting to medical care or competently requesting that such care be terminated, and having his wishes control.”
The Durable Power of Attorney for Health Care Act (Civ. Code, §§ 2430-2443) enables a designated proxy to terminate health care if the principal is incompetent.
This same problem was addressed in
Lane
v.
Candura
(1978) 6 Mass.App.
377
[
See also
Satz
v.
Perlmutter
(Fla.App. 1978)
In the same vein are cases respecting the religious right of patients to prevent or discontinue treatment as they choose. (See
In re Osborne
(D.C.App. 1972)
We agree with the
Barber
court’s statement that the Act applies only to a “limited number of persons” (i.e., terminally ill patients). For instance, the Act permits an adult to execute, in advance, a directive for the withholding or withdrawing of life-sustaining procedures in the event he or she later suffers a terminal illness. (Health & Saf. Code, § 7188.) The Act provides a form for such a directive, one provision of which says that the patient’s physicians, within the preceding 14 days, have diagnosed the patient as being terminally ill. In
Barber,
the court noted that the procedural requirements of the Act were “so cumbersome that it is unlikely that any but a small number of highly educated and motivated patients will be able to effectuate their desires.” (
A fourth state interest—the protection of innocent third parties—is not implicated in this case. This interest has been invoked, for example, where the patient attempting to refuse treatment has minor children who would be left without a parent should the treatment not proceed. The leading case in this area is
Application of President & Directors of Georgetown Col.
(D.C.Cir. 1964)
The record in fact shows that real parties attempted to strike a compromise between their position and the wishes of Mr. and Mrs. Bartling by trying to locate another hospital which would accept Mr. Bartling as a patient. This effort was unsuccessful. As real parties point out, none of the medical ethics “experts” who submitted declarations in petitioners’ behalf were willing to undertake the care of Mr. Bartling.
Had Mr. Bartling survived our mandatory injunction would have read “Ordered and Adjudged that William Frances Bartling, in the exercise of his right of privacy, may remain in defendant hospital or leave said hospital free of the mechanical respirator now attached to his body and all defendants and their staffs are restrained from interfering with Mr. Bartling’s decision.” (See
Satz
v.
Perlmutter,
